We have had one busy year and a half. Dylan age 11 now diagnosed at age 9 is now in remission. When I first became a member of LLS I was upset worried scared and devastated. Fast forward from Jan 2010 till now things have finally slowed down. Dylan has minimum to no side effects from his Glee VEC ! I would say once a month he gets sick. The Glee VEC is very costly. We are told he has to take this for the rest of his life as there is no cure for CML right now other than God.
Dylan did have a set back. Dylan had to have AVASCULAR NECROSIS SURGERY. Dylan goes into the hospital this month on the 18 th to have all the hardware removed.
Dylan should be walking by March 2013.
I'm sorry I have not learned how to navigate LLS. I am working on that. I just got my password reset today just so I could login. I'm going browsing now.
I am available for questions. Thank you all for your prayers for our Dylan. He is one blessed little boy.