7 replies to this topic

[vickicorinne]

We have had one busy year and a half. Dylan age 11 now diagnosed at age 9 is now in remission. When I first became a member of LLS I was upset worried scared and devastated. Fast forward from Jan 2010 till now things have finally slowed down. Dylan has minimum to no side effects from his Glee VEC ! I would say once a month he gets sick. The Glee VEC is very costly. We are told he has to take this for the rest of his life as there is no cure for CML right now other than God. 

Dylan did have a set back. Dylan had to have AVASCULAR NECROSIS SURGERY. Dylan goes into the hospital this month on the 18 th to have all the hardware removed.

Dylan should be walking by March 2013.

I'm sorry I have not learned how to  navigate LLS. I am working on that. I just got my password reset  today just so I could login. I'm going browsing now.

I am available for questions. Thank you all for your prayers for our Dylan. He is one blessed little boy.

Vicki

Texas

[Trey]

Wonderful news!

[vickicorinne]

Thank you Trey Are you the Trey that has a full website on CML ? If so I have that bookmarked to my desk top and you helped me so much

Vicki

[Trey]

Yes, I hope it has helped Dylan in some way....

http://treyscml.blogspot.com/

[vickicorinne]

Yes Sir more than you will ever know ! I'm not sure

how I stumbled upon it but I have referenced

to it many many times. I can remember late nights

my mind filled with worry I would read till I finally

fell asleep. I can only say THANK YOU ! I know

3 CML families and I have referred all 3 of them

to LLS and your blog ! May God richly bless you

your CML your knowledge thereof and many more !

Thank you so much for your hard work persistence

and dedication to the one thing that changed our

lives over night in the blink of an eye !

Blessings

Vicki

[Susan61]

Hi Vicki:  That is fantastic news to see someone so young with good results like this.  Just keep in touch with us for any questions you might have.

God Bless you and Dylan

Susan

[Happycat]

Vicki,

I'm so happy for you all!  How relieved you must be!

Congrats!

Traci

[vickicorinne]

Susan and Traci Thank you so much . He actually would have reached remission before now but the AVN set us back per the doctors !

We remember where we have came from that is for sure and we always look two feet to the left and see other situations. We are in constant prayer for all !