Billie, Praying for the best. I will light a candle for u and Ron on Sunday. If he gets any worse, I would just bring him into the ER, they'll do a full work up there. Shar (pronounce share)
I really need my friends now
Started by
Guest_billronm_*
, Aug 21 2012 09:59 PM
56 replies to this topic
#22
Happycat
-
- Members
-
- 5 posts
New Member
Posted 22 August 2012 - 07:01 PM
Billie,
I can understand the fear and worry you must be feeling now. I hope you get some answers at the doctor appt and won't have to go through too many more days of worrying and not knowing. I've no idea what those numbers could mean, so can't help there. I guess the best advice I can give you is to try to manage the anxiety until then. Prayer almost always works for me.
It's amazing how it helps sometimes. We lost our cat for a few days this week. We had no idea where she was, if she was in house or if she got out. Our neighbor lost her cat the same week, and we had a dreadful feeling it must have been a coyote. So I went to bed last night very sad, and prayed to God to help,us find her, to bring her home to us. About 15 min later, my dd and dh burst into the bedroom with her. She HAD gotten outside and finally worked up enough nerve to approach the house and start meowing once we turned out the downstairs lights.
Anyway, I'm hoping for a good conclusion for you and Ron, too. And if there IS a problem, I trust in God to get you through it.
Hugs,
Traci
#23
Antilogical
-
- Members
-
- 284 posts
Advanced Member
- LocationPittsburgh, PA
Posted 22 August 2012 - 07:18 PM
My hubby had some suspicious lab results, so the PCP sent him to a hem/onc at the cancer center I go to, where he had some additional tests. We were on pins & needles till the results came in & he talked to the specialist. Turns out he has a genetic clotting abnormality - watchful waiting is prescribed, but he has to be cautious when flying & use blood thinners on long trips. The waiting definitely took it's toll on us, & I completely empathize with your angst. Keep your chin up - not knowing is the worst part. The healing comes next!
Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.
Rx: 03/2012-Gleevec400. Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).
Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.
#24
Judy2
-
- Members
-
- 0 posts
New Member
Posted 22 August 2012 - 08:28 PM
Hi Billie,
I'm praying for you and Ron and hoping this turns out to be an easily solved problem. I know that it is very easy to jump to the worst conclusion but the odds are he will be fine.This will be a very hard week for you and Ron but please know that we are all here for you, day and night. You are in the group's thoughts and prayers, you are not alone. If you need me please email me privately and I will do whatever I can to help you through this difficult time.
Hugs,
Judy
#25
pamsouth
-
- Members
-
- 10 posts
Member
Posted 22 August 2012 - 08:41 PM
Hi, Sweet Billie,
Thinking & praying for you and your hubby.
http://www.bluemount...rt/card-3334044
The birds will soon be singing and bringing you cheer.
Hugs xoxo PamSouth
PamSouth
#26
nathaliece
-
- Members
-
- 0 posts
New Member
Posted 22 August 2012 - 10:21 PM
Billie,
I am so sorry you have been living with this anxiety for 3 weeks. First, you are in my and my family's prayers. Second, I hope that the support from this group, who you have been so supportive of, makes the wait until your husband's appointment a little easier. Don't hesitate to vent to or lean on us as often as you need. God knows you have been here for many of us over and over again. Finally, I hope this is one of those times where you prepare yourself for the worst but get to breathe a HUGE sigh of relief because everything turns out just fine.
Thinking of you,
Nat
#27
Guest_billronm_*
Guest_billronm_*
-
- Guests
Posted 22 August 2012 - 11:03 PM
Wow, You all are absolutely AWSOME, WONDERFUL, & So supportive, I am truly blessed to have so many wonderful friends. I know that a lot of you are going through such rough times right now,much worse than playing the waiting game like I am. But you were able to lift my spirits, a lot. Traci I'm so happy your cat came back safe and sound. Sometimes just holding your loving pet is the most comforting feeling in the world. I don't know what I'd do without my little dog Annie. She's not spoiled, she just has us well trained! Somehow she senses something is not quite right so she spends half her time with Ron and the other half with me. I think animals are so much smarter then we give them credit for.
I love you guys, I feel so much better since I told you whats going on, I just keep reading all your posts over and over it is so comforting to me. Love Billie
#28
NotJack?
-
- Members
-
- 3 posts
New Member
Posted 24 August 2012 - 02:37 PM
Hey Billie, I am not much for prayer, but, for what it is worth, I am hoping that all works out in the next couple of weeks for you and your husband. You deserve it. Will be thinking of you, Jack
Jack
#29
Rissa
-
- Members
-
- 12 posts
Member
- LocationMaryland
Posted 24 August 2012 - 04:13 PM
Billie, I'm so sorry to hear of your troubles. You are such an upbeat person and you've brought a smile to my face many times. I will be thinking of you and your husband and I hope everything turns out okay.
Rissa
#30
Guest_billronm_*
Guest_billronm_*
-
- Guests
Posted 03 September 2012 - 11:49 PM
Hi everybody,
Ron has been dx with polycythemia vera. He has too many red blood cells. They took a pint of blood out of him right away, he's getting a body scan thursday, and we'll see onc on Friday. I hope they take another pint of blood out of him then. He's not feeling better yet but I guess it takes a while. He's lost 20 pounds. Could I please have a virtual hug? I'm so scared. Love Billie
#31
cleocans
-
- Members
-
- 34 posts
Advanced Member
Posted 04 September 2012 - 06:44 AM
(((HUGS)))
Sending good thoughts and prayers to you and your husband.
#32
Pin
-
- Members
-
- 202 posts
Advanced Member
Posted 04 September 2012 - 07:09 AM
Oh my goodness - I'm so sorry to hear this Billie. At the very least I'm glad you know what you are dealing with now, but two blood disorders between you - that seems a bit on the unfair side 
I imagine taking blood is the treatment in this stage? I do hope that you two have some family or friends to help you both out? Please know that we really care about you - and make sure Annie is giving you lots of hugs too xxx.
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
#33
pammartin
-
- Members
-
- 631 posts
Advanced Member
- LocationPennsylvania
Posted 04 September 2012 - 08:31 AM
Billie,
I have been trying to get a hold of you, but I know you guys are busy getting things figured out. I will keep trying until I can talk to you. Take care, thoughts and prayers.
Pam
#34
TeddyB
-
- Members
-
- 203 posts
Advanced Member
Posted 04 September 2012 - 08:48 AM
So sorry to hear about your husband
Hugs from Norway.
#35
Rissa
-
- Members
-
- 12 posts
Member
- LocationMaryland
Posted 04 September 2012 - 10:17 AM
Hugs Billie.....
#37
Judy2
-
- Members
-
- 0 posts
New Member
Posted 04 September 2012 - 02:20 PM
Hi Billie,
Sending you hugs and prayers. Please kep us informed as to how your husband is doing.
Hugs Hugs Hugs,
Judy
#38
Lori's okay
-
- Members
-
- 21 posts
Member
- LocationWashington DC area
Posted 04 September 2012 - 03:43 PM
Dear Billie,
My thoughts and prayers are with you and your husband. You are such a help to so many of us on the forum, I so hope that the cheer you have given will come back to you many times over as you go into this challenge!
Lori
DX 09-2011 PCR 8.08 not IS WBC 17 , Began Tasigna 600mg
in 2012 Tasigna 450mg/day ,in 2013-2017 Tasigna 300mg/day
DATE/PCR
09-11/ 8.08 not IS
03-12/ 0.054 not IS
06-12/ 0.035 not IS
09-12/ PCRU, 01-13/ PCRU
4-13/ 0.042 IS
7-13/ 0.014 IS
11-13/ PCRU, 04-14/ PCRU
8-14/ 0.006 IS
PCRU: 12-14/ 05-15/ 10-15/ 02-16/
09-16/ 02-17/ 09-17/
10-17 tapered off
11-3-17 Stopped Tasigna
1-15-18 still PCRU
#39
Ray99
-
- Members
-
- 9 posts
New Member
Posted 04 September 2012 - 04:36 PM
Billie,
Very sorry to hear about your situation. Wish it would come out OK.
You are always post uplifting messages. Keep that spirit up.
#40
Skittles
-
- Members
-
- 0 posts
New Member
Posted 04 September 2012 - 04:50 PM
Hugs, hugs and more hugs Billie! Praying for you both! Skittles
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
