56 replies to this topic

[Susan61]

Hi Billie:  You know we are all here for you.  The waiting is usually worse than the problem itself in most cases.  Its a shame you have to wait till the 29th to see the doctor.  I know how you feel believe me.  My Gary has been with me through all my different problems, and then when he has a health issue I am like you cannot be sick too.

I cannot say anything about what his blood work is doing, as I would not know.  I am sure nobody else wants to guess.

All I can say is that we are all here all the time.  Its at times like this that prayer is my only comfort.  Don't start searching the Internet, that just gets you in more trouble with all the different information.  It might have something to do with the fact his spleen has been removed, but don't try to figure it out.  See what this Hematologist has to say.

Do you see a Hematologist/Oncologist?  Is Ron seeing your doctor?  My prayer list is getting longer and longer, but I know my prayers are heard.

Love Ya,

Susan

[ChrisC]

Billie, dear one to so many:

Your turn to know that while it is scary for us to read of what's happening to your dear Ron, and to you, we want to hear all that you have to say, and to have our attention on you both. There is nothing more than that we can offer, but it is sincere and freely offered.

Keep us close, and be rested and strong for yourself, and for Ron.

You have so much strength and knowledge, so many supportive friends following your current trials: you are not alone, ever.

Go forth and conquer the beast attacking Ron!

And please, get lots of rest, too, both of you.

ChrisC

[Pin]

Dearest Billie, I am so sorry that you and Ron are having to go through this right now - you are such a lovely person, I wish I could just take all the pain and worry away from you. You know that we all care and will always listen when you need help. I really and truly wish there was more I could do - I hope that someone tells you what it means very soon so at the very least, you know what you are dealing with.

Love Pin xxx.

[TeddyB]

Im so sorry to hear about your situation Billie.

Whatever his condition (if any), i wish you the best of luck.

A friend of mine has a blood disorder, and he has to go and "get some new blood" once or twice every year, other than that, he is perfectly healthy and it doesnt effect his daily life at all.

Teddy

[hannibellemo]

Dear Billie,

You always do your best to keep everyone's spirits high. I'm sad to hear you are so low right now! You and Ron are in my thoughts and I'm wishing the very best outcome for him!

My husband's turkey hunting buddy discovered a few years ago after becoming quite ill and needing hospitalization that his body was no longer able to process iron. After diagnosis and treatment he is doing fine. He has diet adjustments, he can't eat much red meat or anything else that is high in iron and other considerations but you would never know now that he had been so ill back then. I'm not saying that is what is wrong with Ron but to encourage you to imagine there are things he could have that will turn out ok even though he seems so ill right now.

I'm going to let you borrow my super hero signature because you need to remember that things are seldom as terrible as we imagine them to be. Also, because I hope it will make you smile...

Love, Pat

[CallMeLucky]

Hi Billie - We certainly know the lumps keep coming don't they?  I am sorry you are hurting right now, I am keeping my hopes up for Ron and for you.  I think it is understandable for someone with leukemia to be freaked out at the thought of their spouse having to see a hematologist - that is going to bring up all kinds of feelings and fears.  As Pat pointed out, try not to jump to any conclusions.  The waiting is always the hardest.  Try your best to keep yourself occupied and wait until you have answers.  Many times these things resolve.  For us we have a harder time with that because it didn't blow over for us, it didn't turn out to be nothing for us, so now we assume it will always be bad news.  More often than not it's usually not really bad news.  So just give it some time.

Please let us know how things are going.

[pammartin]

Hi Billie,

I am glad you have your appointment, but like you said it should be today, the waiting is the kicker.  It is so much easier when we have to deal with things for ourselves, but when it comes to people we love, then we can't stand it, there isn't one thing we can do but wait.  Something people like you and I do not do well.  We want answers and help immediately, scheduling with the medical field rarely delivers this, I have begun to hate the words, 'first available'.

Just like I told you on the phone the other day, I am here for you.  And there are a boat load of people who posted before me who are here for you also.  While you wait, we wait with you, and please let us all what is happening.

I will be calling you soon, and you can cry all you want, I will probably cry with you, but then we will tell a funny/odd story that only happens to one of us and hopefully laugh a little also.

Positive thoughts and prayers to Ron and yourself

Pam

[Trey]

HIgh HCT and HGB is fairly normal for someone who has no spleen.  His numbers are not all that high.

It is more likely that he needs his heart checked out (stress testing, etc).

[Melanie]

Dear Billie,

As one of the readers in the background here and not one of your close contacts, I've followed your posts and have sympathize as well as laughed with you. Just want to add that you and your wonderful husband are on my prayer list too and hopefully with all the support and love coming your way, you'll find some comfort and peace. Please keep us updated.

Melanie

[Marnie]

Billie. . .thinking of you.  In crisis here right now, but will send an e-mail soon.  Try to keep your stress under control.  Don't let your imagination run away with you. . though it's easy to do.  The waiting is difficult, but hopefully on the 29th you will learn that this is nothing serious.  There's no way to know, and nothing you can do between now and then to change what the medical answers will be.  You CAN monitor your own reaction, though that's difficult to do. 

Marnie

[Skittles]

Billie, just wanted to add my prayers to all of the wonderful support from the group.  It's so true that the waiting is the hardest!  My imagination is usually far worst than the truth and here's praying the same holds true for you.  Hugs, Skittles

[Susan61]

Marnie:  Let us know if your feeling better.  You were not doing so good the other day.  Thought Maybe you were on the road to recovery by now, but it does not sound that way.

Susan

[mariebow]

Billie, you know you are my girl, you have made me laugh in spite of.  I do not want you to over stress yourself,   Like Marnie said, you do not know what is going on with him yet.   You need to be there for him when he goes to get checked out and be strong for him and yourself.  I will hold you guys up in prayer.

[janne]

Bille, the one who makes us laugh when no one else could ....thinking of you and praying for you and husband as well. Sometimes getting referred to a hematologist is just to let them make a decision over a very benign issue, taking it out of the hands of the primary practitioners. Having worked as a nurse in a doctor's office I have seen referrals to hematologists with very good outcomes. I understand your worry. You have had a lot on your plate and of course you would be super concerned about your husband. Praying for a very good outcome for Ron. Keep your chin up !!....Take care, Janne