5/2012 - 2.2% (IS)
8/2012 - 17.2% (IS) both done on 500 cells
6/2012 - .006
8/2012 - 2.350 - also stated P190 BCR-ABL1 not detected; P210 BCR-ABL1 detected. Not sure what that means...
Dr says current treatment is not working and is calling my Dr (transplant specialist) at the Mayo Clinic to discuss options. My current treatment is 150 mg of T once a day, reduced to this level due to low RBC, PLT, and ANC. PLT sre now back to low normal, but RBC still low and ANC steady at .8 maintained there by nuepogen shots. Dr says we need a new long term plan. That keeping enough drug in me to fight the disease cause my blood counts to tank and they don't recover without transfusions and shots as maintenance. Decreasing the drug causes the above results. What to do? Therefore he's talking to transplant specialist again, where I've already been typed. He sees the clock ticking with my age (57) and numbers going up. He's wondering if maybe Mayo has access for Ponotnib (sp) as another option or to maybe proceed with transplant. Does anyone have any thoughts on this? I'm still processing... Thinking about seeking a true CML specialist just for any last ideas before considering SCT. I'm in Tucson, AZ, but am thinking of making the trip to MD Anderson. Any suggestions? I'm at a loss.