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Latest PCR test result is encouraging

Started by Ray99 , Aug 16 2012 08:52 AM

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13 replies to this topic

#1 Ray99

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Posted 16 August 2012 - 08:52 AM

I just get my latest PCR test result back and it is 0.23% IS.

My doctor said it is a very good response. Here is my treatment history to share.

3/28 diagnosed, did not get PCR test result due to Lab failure

4/2 started Tasigna 600mg per day

4/6 first PCR result is 73.3% IS

5/2 second PCR result is 10.4% IS, Off Tasigna due to low platelet count

5/24 resumed half dose Tasigna

6/19 third PCR test result is 3.73% IS, resumed full dose Tasigna

8/7 fourth PCR test result is 0.23%

Not quite MMR (0.1% IS) yet, but getting close. My doctor now put me on a three month interval of office visit and PCR test.

I am happy about the result and have a shot of single malt to celebrate.

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#2 CallMeLucky

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Posted 16 August 2012 - 03:47 PM

That's really great Ray, thanks for sharing and enjoy that shot, you deserve it....

Date - Lab - Scale - Drug - Dosage MG - PCR

2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%

2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%

2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%

2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%

2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%

2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%

2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%

2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%

2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%

2013/Mar - Quest - IS - Sprycel - 60-70 - 0%

2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%

2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%

2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%

2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%

2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%

2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%

2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%

2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%

2014/Jul - Genoptix - IS - Sprycel - 100 - 0%

2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%

2014/Dec - Genoptix - IS - Sprycel - 100 - 0%

2015/Mar - Genoptix - IS - Sprycel - 100 - 0%

2015/Jun - Genoptix - IS - Sprycel - 100 - 0%

2015/Sep - Genoptix - IS - Sprycel - 100 - 0%

2015/Dec - Genoptix - IS - Sprycel - 100 - 0%

2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%

2016/Jun - Genoptix - IS - Sprycel - 100 - 0%

2016/Sep - Genoptix - IS - Sprycel - 100 - 0%

2016/Dec - Genoptix - IS - Sprycel - 100 - 0%

2017/Mar - Genoptix - IS - Sprycel - 100 - 0%

2017/Jun - Genoptix - IS - Sprycel - 100 - 0%

2017/Sep - Genoptix - IS - Sprycel - 100 - 0%

2017/Dec - Genoptix - IS - Sprycel - 100 - 0%

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#3 TeddyB

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Posted 16 August 2012 - 04:32 PM

When i get to 0.23% i will take a shot of Whisky aswell

Congratulations!

Teddy.

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#4 mariebow

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Posted 16 August 2012 - 06:43 PM

So happy for you.

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#5 Susan61

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Posted 16 August 2012 - 06:49 PM

Thats Great News Ray. Thats what we all like to hear. Congratulations!!

Susan

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#6 Ray99

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Posted 16 August 2012 - 07:17 PM

Thank you all for your encouragements and blessings.

I remember that Teddy and Mariebow have very good progress also. Wish you continue the path.

So far so good, and hopefully my number will continue to go down. Based on the experiences of people on this board, I understand that unexpected turns could happen somewhere down the road. And I hope that luck will continue to stay with me.

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#7 TeddyB

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Posted 17 August 2012 - 01:05 AM

Some new research suggests that reaching a less than 10% pcr within the first 3 months is considered a very important goal for long term stability, since we have both reached that goal lets hope we maintain our good response. I guess nothing is certain, but at least i feel we are on the right path, lets keep it up!!

Teddy.

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#8 Floa7

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Posted 17 August 2012 - 06:47 AM

WTG Ray. I had my PCR yesterday and waiting on the results. My 3 months were .22 So I get my 6 months results back next week. Its going to be a long week till next Friday.

Flo

1 2012 CML detected Started Gleevec 400 mg

In nov 2014 my pcr started to rise by Feb I stopped Gleevec and went onto

2 2015 Tasigna 600 mg/day

I have been PCRU for 2 years and stopped Tasigna 4 7 2017

5 8 2017 results 0.008

5 30 2017 results 0.028

6 30 2017 results 0.3, I have restarted the Tasigna because it went above 0.1

My son

11 2011 CML detected Started Gleevec 400 mg

He went 2 1/2 years on gleevec and lost PCRU

Started Sprycel went PCRU for 2 years and stopped the Sprycel, went back for 3 month checkup and PCR was 8.0