I had posted a few weeks ago I have maintained my PCRU and my BMB has no CML cells noted on the ones they examined, but I have a question. I revisited Cleveland today and received the chromosome testing and the oncologist states it does not have the PH+ chromosome. I was under the impression we always have the PH+ chromosome and it would show up in any chromosome testing. Is this like the PCR test which only goes to .001% and there are still detectable cells if one tested further, or for now am I PH+ chromosome free for the moment.
I am only curious, this does not mean I am going to stop the med, lower the dose, or take supplements, it is working and I am not interested in changing anything at this point. But of course after I am home, the mind wonders.
The doctor stated I have achieved cytogenetic response, an excellent milestone in 10 months of treatment. I was thinking I had achieved that after the PCR test and the BMB came back clean before the chromosome test results were in. I am confused once again about what is considered response and the different milestones. I will have to read up on Trey's info again.
I am to see her in three months and if this PCR test that was completed today is good, I will only visit Cleveland once or twice a year and follow up with local oncologist for 3 month visits.
Drinks are on me!