Hi! Well, went and had my checkup on monday, it's been a couple months since I have seen my onc. The last time I was there he told me that when I came back today that we would know more on how the tasigna is working. He told me that my blood count, don't remember what the test was but it had to b sent to mayo for the results they couldn't get the results at the clinic here because apparently it is a very precise test. When I was dx in march 26. Of this year, he told me that I had 96% cancer in my bone marrow. And he told me it has to go down to .01%. But he also told me that today we would know if the tasigna is working. I have waited for this day for so long praying it was working. so I go to my appointment and he tells me it is 1.47%. I was overly excited, wow it went from 96% to 1.47 it's a miracle !! Then he tells me that those numbers don't mean anything until I get it below .01%!!!! Devastated to say the least. Then he tells me that I have to have my bone marrow biopsy in three months and THAT will tell us the story. He said when I was dx that my biopsy showed 20 out of 20 had cancer cells. And if these don't go down I have to go more aggressive therapy. Anyone out here know what the sam hell is going on? I just wish he wouldn't get my hopes up so and then when then-date comes of progress there is always another test to do. So right now I am back at square one. I know nothing. He did tell me that only 3% don't reach the goal he is looking for. He is very hard to understand so I really cannot say the response he is looking for. I wish I would of wrote down but I am sure you understand what I am talking about. Well I am just wondering if anyone out here has gone thru this and what ur outcome Has been and any advise u might have besides wait for another 3 long months. I really don't like this roller coaster I'm on
that since I started tasigna my WBC went from 210,000 to 5,100. All blood work is just about normal, my numbers went from 96% to 1.47%. Doesn't this mean anything??
o I guess I'm just looking for that wow moment, so u guys that are on tasigna or know anything about it, is this how it went for u? I truly would like to hear ur story on ur progress, I just want to know what's happening to me is this normal? thanks again. Kris