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Celebrating first PCRU...


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#1 Happycat

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Posted 31 July 2012 - 09:26 PM

May there be many more!  Champagne and chocolates, even got the kids some of the fizzy apple cider for them to drink. They got sour patch kids, too.  It's nice to see a PCRU, although I know I could show up with a low number next time, just bouncing around the limits of detection.

Woohoo!

Traci



#2 Pin

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Posted 31 July 2012 - 10:00 PM

Yaaaaaaaaaaaaaaaaaay! That's great news Traci! Hopefully it will stay there!

I'm so glad you are celebrating with your family


Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

 

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01 

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14


#3 Cliffee

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Posted 31 July 2012 - 10:11 PM

Congrats, thats awesome!

Must feel wonderful.

When was dx and what are you taking?



#4 Guest_billronm_*

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Posted 31 July 2012 - 10:52 PM

Congratulations Traci!!!! Think Positive Thoughts   Billie



#5 pammartin

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Posted 31 July 2012 - 11:11 PM

Happy Dance.jpg



#6 GerryL

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Posted 31 July 2012 - 11:13 PM

Congratulation Traci - hope it continues.



#7 Lori's okay

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Posted 31 July 2012 - 11:39 PM

Cheers, cheers, cheers!!!!  Traci I am so happy for you!!!!!  Hope it is the first of many!

Lori


DX 09-2011 PCR 8.08 not IS WBC 17 , Began Tasigna 600mg  

in 2012 Tasigna 450mg/day ,in 2013-2017 Tasigna 300mg/day

DATE/PCR

09-11/ 8.08 not IS

03-12/ 0.054 not IS

06-12/ 0.035 not IS

09-12/ PCRU, 01-13/ PCRU

4-13/ 0.042 IS

7-13/ 0.014 IS

11-13/ PCRU, 04-14/ PCRU

8-14/ 0.006 IS

PCRU: 12-14/ 05-15/ 10-15/ 02-16/ 

09-16/ 02-17/ 09-17/ 

10-17 tapered off 

11-3-17 Stopped Tasigna

1-15-18 still PCRU

 


#8 hannibellemo

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Posted 01 August 2012 - 05:05 AM

Congratulations, Traci, way to go!

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#9 janne

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Posted 01 August 2012 - 05:56 AM

Yahoo Tracy !!! Good news!


Dx'd: 8/2008. Started Gleevec 400 mg 11/08. 

Drug break 2011.

Started Tasigna 4/11 450 mg.

Reduction to 300 mg Tasigna 1/2012.

PCRU 9/2012.

12/2012 Detectable.

PCRU 4/2013 through 3/2015. (Reduced to 150 mg 7/2014)

12/2015  ? slightly detectable at probably less than 0.01% per Mayo Clinic.

4/2016 PCRU. Still at 150 mg Tasigna.

 

CESSATION: stopped treatment 7/20/2017. 

9/6/2017:  barely detectable at 0.01%. 

12/11/2017: PCR at 0.09% (did not do the monthly PCR testing.) 

12/18/2017: Inevitable call from Onc. Started back on Tasigna at 150 mg. (Considering Sprycel low dose.) 


#10 Ray99

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Posted 01 August 2012 - 06:11 AM

Congratulation!!!  A major achievement.



#11 CMLSurvivor

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Posted 01 August 2012 - 09:57 AM

Congratulations!!!!! That is wonderful. You must feel like a little weight has lifted off your shoulders.



#12 CallMeLucky

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Posted 01 August 2012 - 12:35 PM

That is wonderful


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#13 LivingWellWithCML

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Posted 01 August 2012 - 12:58 PM

Awesome news.  Congratulations!


Dan - Atlanta, GA

CML CP Diagnosed March 2011

Gleevec 400mg


#14 Rissa

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Posted 01 August 2012 - 01:13 PM

Very cool!!!



#15 chuckles570

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Posted 01 August 2012 - 02:12 PM

Congrats... here is a toast to many more...



#16 Susan61

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Posted 01 August 2012 - 05:41 PM

Hi Traci:

    Congratulations!!!!!!  This is just great, and you keep celebrating for many more PCRU results to keep on coming.

Susan



#17 BY196

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Posted 01 August 2012 - 06:18 PM

Congratulations!

Beth



#18 cleocans

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Posted 01 August 2012 - 06:50 PM

Congratulations!  That is great news!  Here's to many more!

Kim



#19 Dina36

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Posted 01 August 2012 - 07:07 PM

That's great. I'm happy for you Traci.

Congrats!!!

Dina



#20 Marnie

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Posted 01 August 2012 - 07:26 PM

Yea. . .congrats.  I will pretend that the glass of champagne I just drank was in celebration of you!  If I had checked the site earlier, it would have been! 

Marnie






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