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3 month checkup on Thursday, starting to feel nervous.


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#21 GerryL

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Posted 16 October 2012 - 01:32 AM

Hi Billie,

Fingers crossed my blood work will continue to be good as I'd like to go in one of the STIM trials here in October next year. At least that's the plan at the moment.

Hopefully your iron levels will return to normal sooner rather than later.



#22 TeddyB

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Posted 16 October 2012 - 05:04 AM

Thanks for sharing GerryL, Billie and Pin.

Hope your stress levels get better soon Billie, its always tough going through this kind of crap, it will get better once things start to settle down. I remember i was in panic mode the first 3 months after my dx as well, and my girlfriend too had a really hard time.

GerryL: I believe you will get in the STIM trials, and i am hoping to join you in a few years

Cheers Pin!!

Teddy



#23 Pin

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Posted 16 October 2012 - 06:17 PM

Not sure - they do it at the hospital where I live so I guess that removes a lot of paperwork. I can't understand how it can take so long for them to get the results back to you - they have to be done on the sample within a couple of days don't they? Thanks for the finger-crossing, although I have some news that isn't so great


Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

 

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01 

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14


#24 GerryL

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Posted 16 October 2012 - 08:19 PM

I have a feeling some of the time is used up in the paperwork sitting on someone's desk waiting for sign off.lol






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