I am having my 3.5month checkup this Thursday (3,5months instead of 3 months because of summer vacation), and im starting to "feel the heat", as i understand this is a kind of landmark checkup for us CML`rs.
The onc is only taking blood this time, he said he might go for a BMB on my next checkup.
So far ive been doing great on Gleevec according to the onc, but im afraid of Gleevec not doing its job on the "higher level" leukemic cells, but i guess i will find out next week. Do they usually measure bcr+abl levels on the first tests, or just the 3 and 6 month tests? Onc said they took the bcr+abl tests each time, but they werent really looked into that much until after 3 months of treatment. Was he talking about FISH or PCR?
The body seems to be handling Gleevec pretty well except from some dry skin and some minor constipation issues.
Just came back from a 2 week vacation yesterday, and Gleevec side effects have better than ever. We spent one week in the south of Norway at our summer cabin, and one week in a rented summer house in Sweden with 5 other families, which went a lot better than expected. (11 small children in one house is no joke! Luckily the house was very big) We went biking, swimming, had a few walks along the beach, and drank a few glasses of wine in the evenings after the kids were put to bed.
Anyway, are there any specific questions i should i ask on this checkup?
I understand that if results are sub optimal, i should change strategies pretty quick, and either change medication or increase dosage of Gleevec. The onc knows this of course, but i value your input as well.
My hope is that i can continue the 400mg dose of Gleevec, as side effects are starting to loosen up, and life is currently pretty good, with the exception of some mental stress now and then worrying about the disease progressing.
Just needed to vent a bit, thanks.