5 replies to this topic

[nathaliece]

Hi,

I am a 50 year old female and was diagnosed in 11/10 and have been on 400 mg Gleevec ever since.  I found out I was PCRU in 3/12 (hooray!).  Over the past month, I have begun to experience significant hair loss.  I know this is a potential side effect of the Gleevec but I was fortunate not to deal with it until now.  I am curious if this will continue or if it is just a temporary side effect like many of the others I have experienced.  I practice law full time and it is starting to become more noticeable.  Anyone with experience to share would be appreciated.

Thanks,
Nat

[Aussiegirl]

Nat mine use to fall out by the handful. I am on 400 mg Gleevec 2 years this month. Check the side effectsof other medications and interactions. I found my BP meds also caused hair loss. I had that switched about 5 months ago and now its not near as bad. I am still hoping some comes back cause its really thin now but hasn't happened yet.

[Susan61]

Hi Nat:  I was diagnosed in 1998, but did not start Gleevec until 10/2000.  I had a slight hair loss in the beginning, but now I just deal with sections of curly hair.  If it was curly all over I could style my  hair better, but its only sections.  Then other sections are wavy.  Somedays I have a tight curl on the right side of my head.  I drive my Beautician nuts when she trys to style it.  So many different meds can cause so many odd things.  Try the B-12.  I was told I am low on B-12 awhile ago, but never told to take a supplement.  Being it was brought up, I should take it along with my Vitamin D.

Susan

[nathaliece]

Billie, I have been told my B12 was borderline low.  How much do you take each day?  Other than Zofran and pain Meds to deal with Gleevec side effects, I am not any other medications so I am blaming the Gleevec!