Interesting article in Cure magazine about skin sensitivity:
Awareness of Skin Sensitivity article
Posted 03 July 2012 - 09:07 AM
Interesting. It doesn't say specifically TKIs, but I know people here mention sensitivity to sunlight. I have noticed since my change to Sprycel, my eczema had gotten out of control. It is all over my body most of the time, itchy and painful blisters. Mosquito bites are the worst. I had horrible eczema as a child and was always prone to mosquito bites. However, I have never gotten bitten so bad with such welts (size of a US quarter) with swelling and spreading! When I get bitten it actually spreads out into a prickly rash and breaks open. Never had that until Sprycel. Not sure if the eczema has just come once again brought on by advancing age, or it is side effect of Sprycel. I suffer the eczema along with my toddler. Poor child. It appears he inherited the condition from me as I have from my mother.
All these unknowns. Not sure if any of this is the TKI or just what would happen anyway. But it makes me question. I know there are others here that get a ueber bad reaction to mosquitoes since TKIs. Has anyone else had a similar problem with eczema? I never mentioned this before because, if you can believe it, it was always the least of my problems.
Posted 03 July 2012 - 10:30 AM
I had really bad Eczema as a child and various breakout periods through my life. My wife also has it and my son has it too, but not too bad.
My skin is definitely more sensitive with TKI. I am somewhat allergic to sunlight and get itchy rash when I go out in sun, especially if I don't have on sun block. Ironically the sun used to help my eczema. The dermatologist prescribed a good cream for my son, I forget what it is called, but there is some very good stuff on the market compared to 30 years ago when I really suffered with it.
Some basic things about eczema I have learned over the years.
Eczema can be brought on and made worse by stress
Try to avoid coffee, tea, soda, and chocolate. I had worked with this really good dermatologist years ago, really old guy kind of nuts but he knew his stuff. To this day I remember the conversation, he said "avoid coffee, tea, soda, and chocolate" I said "oh you mean I should avoid caffeine". He just stared at me and said "No. Avoid coffee tea, soda, and chocolate." Apparently there is something in these products that can aggravate eczema. I found that when I did avoid that stuff, it helped.
Eczema can be driven by food sensitivity
Salt water and chlorine water can help, so go swimming, but don't sit around in a wet bathing suit, that can make it worse.
Besides the eczema I have these red dots popping up all over my body - cherry hemangiomas. I brought it up to my onc again, she looked at them and said they are benign. I said I knew what they were but did it concern her that since I started Gleevec they have been popping up all over me and not going away? I project that if I survive long enough, I will eventually be completely red. She said they are usually driven by hormonal issues and it is more often something seen in women. I'm not sure but I think it was a swipe at my masculinity because she kind of laughed when she said it. Nonetheless the part about it being hormonal stuck with me and ties into a theory I have about why I am tired and muscles hurting. Someone had posted a while back about going to an endocrinologist and getting some results, I'm thinking about going to see one soon.
Posted 03 July 2012 - 10:50 AM
I have noticed that even though I was fair skinned to begin with, I am even more so since I have been on Gleevec.
Posted 03 July 2012 - 11:12 AM
Oh yeah, by the next time the census is done I'm going to be able to respond "Translucent" for skin color.....
Posted 04 July 2012 - 09:40 PM
Awareness of Skin Sensitivity (ASS) is especially distressing when combined with High Order Lumeniferous Envelopment (HOLE). The two should NOT be combined under any circumstance.
Posted 04 July 2012 - 09:54 PM
You comfort me, with you around no question goes unanswered.
Posted 04 July 2012 - 10:29 PM
I used to tan a lovely medium to dark brown and never have used sun screen, now I have some color, but old scars show up white so I end up looking like I have been through wrestle mania and lost. I was prepared to be sun sensitive after reading all the posts on here about the TKI's and Sprycel, instead the sun ignores my presence and my battle scars with lawn mowers, tree trimmers, grass shears, thorn bushes, and my usual clumsy self are what show up now. I have been outside all day and not even a hint of brown/red/tan. Instead I have lovely white scars. Some small some larger, but very noticeable and evident. I guess I should be thankful I have not turned translucent like Lucky. Billie, what does the sun to do you? You probably told me before but I forget.
Posted 04 July 2012 - 10:35 PM
Seems like I see those two things in combination an awful lot. . .
Posted 04 July 2012 - 10:52 PM
In Fla. I looked like I had ringworm!
You must see the same two things I see! Nah, I know you see many more. How close are you to those fires? I hope you're safe. That's mighty scary. I always have the spare room, and the pool and Lake Erie. It's an open invitation.
Hope you both had a happy 4th. Lots o luv Billie
Well forget Lake Erie, unless you want to go fishing, it's almost time for walleye! Ron retired from the Pa Fish and Boat Commision, we never got fish when he was working, and he has no desire to fish now. I guess I'll have to go myself. But there's always some moron who has his pole in the way when I cast, so I usually end up catching his bait. Fishermen have no sense of humor.
Message was edited by: Billie Murawski
Posted 05 July 2012 - 09:29 AM
HI, Billie. . .
The closest we got to the fires was when we decided to ride the bikes up Pike's Peak last weekend (near Colorado Springs). We got turned back by the fire, and then found ourselves in the midst of evacuation traffic. We got off the main road and hopped onto a dirt road to get home, and came across some hot shots (specialized forest fire fighters) keeping an eye on the area. Ended up in a torrential downpour on the way home, so hopefully the water helped with the fire and the lightning didn't start any new fires.
this weekend we'll head north on the bikes to survey the fire zone from the High Park fire, which went through one of our favorite kayaking areas. Sounds like it's pretty devastated, though they did save the little town on the river. Apparently 5 local volunteer firefighters saved the town using a bucket-brigade when no one could come to help them since they were busy fighting a different part of the massive fire.
Posted 26 January 2015 - 11:48 AM
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