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#1 Floa7

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Posted 01 July 2012 - 10:36 AM

I got diagnosed on Jan27th with CML and been on 400mg of the big G since Feb. Finally got my results back of the PCR. Which was .22%

All the other blood tests were normal. I am feeling great. Not to many side effects from G. Guess I got used to them.

Here is my Happy Dance.

http://www.youtube.c...h?v=0W3ZXQqJWH8


1 2012 CML detected Started Gleevec 400 mg

In nov 2014 my pcr started to rise by Feb I stopped Gleevec and went onto

2 2015 Tasigna 600 mg/day

I have been PCRU for 2 years and stopped Tasigna 4 7 2017

5 8 2017 results 0.008

5 30 2017 results 0.028 

6 30 2017 results 0.3, I have restarted the Tasigna because it went above 0.1 

 

My son

11 2011 CML detected Started Gleevec 400 mg

He went 2 1/2 years on gleevec and lost PCRU

Started Sprycel went PCRU for 2 years and stopped the Sprycel, went back for 3 month checkup and PCR was 8.0

He went back onto Sprycel and now is PCRU again

3 16 2017 results 0.008

6 1 2017 results 0.002


#2 Susan61

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Posted 01 July 2012 - 12:24 PM

Congratulations!!!  Thats also great that you do not have too many side effects from the Gleevec.  I agree you either get used to them, or they seem to lessen with time.  May you continue on this path to get to PCRU

Susan



#3 Marnie

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Posted 01 July 2012 - 04:47 PM

Congratulations, Floa!  I was going to post the energizer bunny happy dance for you, but I couldn't find it.  Oh well!!

Marnie






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