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Work around automobiles?


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#1 dennyzb

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Posted 16 June 2012 - 05:45 PM

Just wondering if any of you CML's have or did work around automobiles or Paint and Body shops?



#2 lindacarriere

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Posted 17 June 2012 - 11:19 AM

My husband has worked at car dealerships and around automobiles for the last 28 years.  He was diagnosed in April with late stage Chronic CML.  I suspect there is some sort of correlation, but no one has really brought forward any connection.



#3 mikefromillinois

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Posted 17 June 2012 - 11:45 AM

Hello, I'm 60 years old now - I was diagnosed with CML a year ago.  From ages 20-30 I worked for car dealerships.  I have also spent a lot of time over the years stuck in city traffic.  I think I read somewhere that some think there is a connection between CML and unleaded gas.  The consensus here seems to be that "we will never know" the "cause" of our CML.  Probably true.  On one hand, if you have CML it really doesn't matter (to you) what caused it - on the other hand, if there is a real cause-effect laying in the weeds out there...for the benefit of those who are NOT YET afflicted, it would be nice for science to figure that out.

Here's wishing you and your husband good health and many happy days...

Mike



#4 dennyzb

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Posted 18 June 2012 - 05:12 PM

Well that's three of us so far...I worked in dealership for 25 years



#5 bkspecialk

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Posted 19 June 2012 - 01:22 AM

Hi, Let's make that four of us.  I was dx July 2010.  I have worked in dealerships for 28 years.



#6 Taylor

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Posted 19 June 2012 - 10:08 AM

FWIW, when I was 17 I helped my dad restore an old Chevelle.  We did a frame-off restoration, rebuilt the engine, and I did a lot of scrubbing old parts with solvents.  I was also in the paint booth when they painted the vehicle.  I'm not really certain that was it for me though.  I'm 25 now.



#7 dennyzb

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Posted 19 June 2012 - 01:06 PM

There is 5 now. Lets see what happens



#8 tazdad08

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Posted 19 June 2012 - 02:24 PM

Well, I am one more on this list. I was diagnosed at age 39 (1 year ago). I sold auto parts to garages and body shops from 1990 til 1999. 


Diagnosed in September 2011. Tried one year of Sprycel. Had great response. Became undetectable in a few months. Changed to Tasigna hoping for less side effects. Self medicated myself down to 20% dose and held for 3 years before becoming detectable again. It has been a journey that has helped me realize what life is about! I am all about a balanced life. I firmly agree with my decision to lower my dose. What is life if you aren't living? Mine will never be the way it was, but it is going to be as good as I can make it! Drs PRACTICE medicine, we can guide our dr to help us with a better life! Don't settle until it's acceptable to you!


#9 CallMeLucky

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Posted 19 June 2012 - 02:25 PM

I am cautious of confusing correlation with cause and effect, but for what it is worth, I also used to work in car dealerships for a couple of years after college.


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#10 LLsurfer5@gmail.com

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Posted 19 June 2012 - 02:56 PM

There has been sutudies and talk about Benzene which is a a petroleum based chemical /priduct that is used to make other chemicals:  It is everywhere; in the automotive, auto supply, aircraft, vessel, merchant marine industries. I have worked around cars, boats and planes for 25 years with my job. I was exposed to many chemiclas and benzene too. See the study the French did on children with Leukemia living near auto body shops. Even though the study was in 2004, there have been more studies recently to link CML with Benzene.

http://www.webmd.com...ldhood-leukemia

LAL



#11 Chris1579

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Posted 19 June 2012 - 09:07 PM

Another one - my Dad, DX 2-17-12 with CML, was an auto body man his entire life, working in several body shops and later opened his own auto body shop - I spoke with him today and mentioned this conversation on the site - he was wondering age ranges -



#12 dennyzb

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Posted 20 June 2012 - 01:31 PM

Christa,

Count is up to 8; I worked in Body Shops from 1975-2003 I remember Osha barging in the shop in 80's and the dealer had to close old shop and reopened new one down the street that met their codes. I am 55, How about your Dad? I was DX 3/10 with CML



#13 dennyzb

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Posted 20 June 2012 - 01:42 PM

Just wondering what state?



#14 car-guy

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Posted 20 June 2012 - 07:25 PM

dennyzb, I was 30 year automechanic Ford dealerships, was diagnosed in Feb. with cml, also found out a co-worker was diagnosed before my diag.with a more aggressive stage of leukemia.  Hey, another question has anybody considered disability due to cml?



#15 Chris1579

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Posted 20 June 2012 - 08:39 PM

Dennyzb,

My Dad is 74 - worked in several dealerships before opening his own auto body business - he was a bump man not the paint man - but I am sure it was well before proper spray booths etc. for air quality.  Is interesting to see how many worked in the same or similar environments.



#16 LLsurfer5@gmail.com

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Posted 21 June 2012 - 09:23 AM

45 when diagnosed



#17 dennyzb

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Posted 22 June 2012 - 03:10 PM

Car Guy -9 and counting ; help is possible throw in some side effects like brain fog, bone pain, muscle cramps and fatigue...see long list of side effects on RX



#18 Goldfinger

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Posted 23 June 2012 - 05:34 PM

No offense to anyone but given the large numbers of people working in the auto industry, it's possible the rate of CML incidence is no higher then that of the general public. I've never worked around cars, chemicals and my family has no history of leukemia, yet I've had it for three years now. I am 54. Much more research is needed to find the causes.

Steve



#19 dennyzb

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Posted 25 June 2012 - 04:24 PM

Steve,

It was just a question I have been curious about since I was DX; I am happy I asked the question. If you don't ask you will never know!



#20 Guest_billronm_*

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Posted 26 June 2012 - 12:20 AM

Hi Steve,

  A few years ago my onc introduced me to a naval officer who retired because he had cml. Before he retired he did an in-depth study on cml, he definitely believes benzene is one of the major causes of cml,not just from working in the auto industry, but many places we go, we are exposed to benzene, gas stations are one of the worst places, and soda pop is another big factor, it's hauled back and forth all over the country, in hot weather & cold weather, some gas stations set it outside during the day and bring it in at night, all the changes in temperature cause chemical reactions in the soda and produces benzene fumes. A certain group ( I don't know their name, is pushing congress to take the soda pop machines out of all the schools. I truly believe benzene is one culprit, but I'm sure we have been exposed to so many different chemicals in our lives that we will never know for sure.  Good Luck Billie






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