I've been taking Tasigna since Feb 2011 and it's always been shipped to me straight from Novartis because I didn't have insurance and was placed on their assistance program.
As I had finally gotten insurance, my place on the program lapsed and last month I placed an order for the meds from my oncologist's specialty pharmacy. No problem at all, I picked it up the next day. This morning I called because I'm almost out again (I have 8 days left, not including tonight's dose). They said it was no problem and I could pick it up Monday or Tuesday.
They then called back and said that the prescription was rejected. I had to call CuraScripts and figure it out, turns out that they just don't have it in supply so they have to verify my benefits and prescription...which could take 24-72 hours, and it's Friday. I wasn't in their system...yet my onc's pharmacy used everything to get my prescription last month; not sure what's different. Then they said it would take 5-7 days to get the meds to me after that. Thankfully they marked it as "urgent"...but who knows what that will do.
I reached FISH negative in August, 6 months after treatment, and was PCRU in September. Last PCR from March showed 0.001% on PCR so I'm still good with that.
So let's say I go four or so days without meds at the worst...is that okay? Or the last few days should I drop down to a half, almost "maintenance" dose so I can still have a decent supply in my system. My onc's nurse said a couple of days would sure be fine but I'd like more peace of mind...
Thank you all!