Sarah,
I just re-read your other post and came back and looked at your Hgb. No wonder you are tired - you're pretty anemic.
I understand your onc only wants to see you every 3 months, I'm thinking you need a new onc. Quite frankly, she doesn't seem to know what she is doing in your case. Your counts are way too low to only be seen every 3 months. I was seen every week and then every couple of weeks for a long time until my counts stabilized.
You have to be your own advocate! I know it's hard when you are feeling like crap but you are not getting the medical care you need, you are not being seen as often as you should be seen and your onc is not listening to you when you tell her how you feel.
I don't mean to seem harsh but sometimes when we're feeling bad that is the only thing that gets through the fog. I can be sympathetic (and I am) or I can tell you something you need to hear - get a new doctor, this one is not helping you OR to be fair to the doctor, take someone with you to the appointment you are going to make with her today and make sure she understands how bad you feel and that your counts are too low not to be followed closely and you want to see her every two weeks for blood work until they stabilize! Then if she still isn't responsive ask for a referral to another onc for a second opinion.
Good luck!
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>