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Can still do free genetic testing, for life

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#1 ChrisC


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Posted 22 May 2012 - 10:27 PM

A number of us have participated, and it is fascinating to learn one's genetic makeup, a bit about ancestors, and so on. It also helps them learn more about CML and thus benefits ourselves and future generations. We all want to avert disease before it arises!


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Be alert, but not overly concerned.


• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week

• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)

• Oct. 28, 2008: CML confirmed, start Gleevec 400mg

• Oct. 31, 2008: sent home when WBC reached 121k

• On/off, reduced dose Gleevec for 7 months

• April 2009: Started Sprycel 100mg

• Sept. 2009: PCRU 0.000

• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)

• Currently: still steady PCRU, testing every 6 months 🤗

— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!



#2 0vercast


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Posted 22 May 2012 - 10:41 PM

This sounds interesting.  I'm going to do it.  It's just a saliva sample they need.

#3 Tedsey


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Posted 24 May 2012 - 04:27 AM

I am tempted. However, I cannot help fearing this company trying to own a patent on to a certain gene or protien.  That would limit the freedom of other researchers or drug companies to develop better drugs, or a cure.  It could really slow down or put the kabosh on future research and development.  Somewhat along these lines: http://www.pbs.org/n...ents_04-02.html

Just a thought.


#4 Happycat


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Posted 25 May 2012 - 04:31 PM


A patent doesn't always mean " you can't touch this". What it does mean is that companies need to ask for a license or some other sort of partnership before developing or marketing a treatment - meaning the patent company gets a cut of any proceeds.  In other words, it says "you have to pay to touch this".

There, let's see if that will bring Phil out of hiding for a ribald riposte!  Phil, you gotta love that softball right down the middle.


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