Welcome to our family! I was like you I thought ignorance is bliss. I have had cml for 5 years, 3 years on Gleevac, & going on 2 years on Sprycel. I stumbled on this site by accident almost 2 years ago. I followed it for a couple days, I was afraid it would be a gloom and doom site. And that's the last thing we need when we are told we have cancer. But after following the board I realized they were all nuts and I would fit right in!
You'll never meet a group of people that are more compassionate,caring,& understanding. But we all have a great sense of humor, and you have to laugh once in a while. You'll get all the answers to any question you might have,whether it's about cml, or side-effects from our meds.One of the first things I learned was that every symptom we get is not cml related, or a s-e(side effect) from our tkis( Gleevac,Sprycel,&Tasigma) I'm just getting old and and I have to accept it. But I'm going to blame cml as long as I can get away with it. Hee Hee. All our meds even aspirin have s-e,and some people on tkis have no s-e, and some of us have different ones especially when we first go on a new tki, most of the s-e go away once our body adjusts to them, and once in a while a s-e will appear out of the blue then go away and never come back again. I was on G for 3 years,but the gi issues were to hard on me, but I had gi problems before that. So my onc switched me to S which gave me a headache from hell at first,which is a common s-e with S but it gradually eases up daily and it took about 2 weeks before the headaches were under control,and now I hardly ever get one, I usually lay down about 15 minutes and it goes away. I took ibuprofin liquid gels and they helped me get through those first couple weeks. Other than that S has been a lot easier on me than G was. I have a couple other health problems that I have to take medicine for. I really think if I only had to take Sprycel I would feel pretty darn good right now. Pat had a pe(pleural effusion) which is rare but she can explain it better than I can. Just jump in anytime and ask a question,or contribute to the discussion,we learn something new everyday especially from our newcomers. Sincerely Billie