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Happy Mothers Day


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#1 Johnc

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Posted 13 May 2012 - 08:49 AM

Happy Mothers Day to all the Mothers on this Board!

God Bless and enjoy the Day!



#2 nathaliece

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Posted 13 May 2012 - 08:53 AM

Thanks!



#3 Floa7

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Posted 13 May 2012 - 08:59 AM

Thanks


1 2012 CML detected Started Gleevec 400 mg

In nov 2014 my pcr started to rise by Feb I stopped Gleevec and went onto

2 2015 Tasigna 600 mg/day

I have been PCRU for 2 years and stopped Tasigna 4 7 2017

5 8 2017 results 0.008

5 30 2017 results 0.028 

6 30 2017 results 0.3, I have restarted the Tasigna because it went above 0.1 

 

My son

11 2011 CML detected Started Gleevec 400 mg

He went 2 1/2 years on gleevec and lost PCRU

Started Sprycel went PCRU for 2 years and stopped the Sprycel, went back for 3 month checkup and PCR was 8.0

He went back onto Sprycel and now is PCRU again

3 16 2017 results 0.008

6 1 2017 results 0.002


#4 hannibellemo

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Posted 13 May 2012 - 12:33 PM

Thanks, John! And I would say the same to all my BIFs who are Moms!

Pat


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"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#5 momruns

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Posted 13 May 2012 - 01:11 PM

Greetings,

The sun is out here in Erie, Pa.  And I am blessed to have a great son and a great daughter to enjoy the day with.  Also, my own mother is 93, lives next door to my sister, and is a breast cancer surviver.  Enjoy the day, and to all the mothers'  Happy Mothers Day!!!!

Loreta



#6 Antilogical

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Posted 13 May 2012 - 09:34 PM

What a nice post - thanks, Johnc.


Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.


#7 HeatherZ

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Posted 14 May 2012 - 09:36 AM

Thanks Johnc.  I did have a very relaxing day.  Went to the creek (or as we call it  The Crick) and tried to do some kayaking.  Notice I said tried - when I was getting in I dumped myself and banged my leg on a rock.  I am pretty bruised and have some bad brush burns.  All in all it was a great way to spend the day.






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