Dennyyzb I think the docs think we should just be thankful there is a treatment for CML and guit complaining as many cancers don't have a good outcome. What they don't get is quality outweighs quantity in some cases.
Does anyone experienced this type of spasms after taking Gleevec for years
#21
Posted 19 June 2012 - 01:38 PM
#22
Posted 19 June 2012 - 03:02 PM
I have been on Gleevac for three years now. I get the crushing bone pain in mainly my long bones (legs and arms). It feels like they are in a vice. I too have increased my magnesium as well as B12 and folic acid. It seems to have made the pain weaker (if that makes any sence). I will try the magnesium spray and give that a try. Anything is good to know with the darn side effects of Gleevac
#23
Posted 20 June 2012 - 12:25 PM
I have found that excessive sweating (San Antonio heat + walking golf) greatly increases muscle cramps, and that taking extra potassium is the remedy that works best. I personally think extra potassium is a better remedy than magnesium. And magnesium increases the sharts (as in Milk of Magnesia laxative).
Bone pain is a somewhat separate issue related to TKI drugs changing bone mineral metabolism.
#24
Posted 26 July 2012 - 01:07 PM
My feet and legs cramp really bad whenever I am working in the yard, especially in the Florida heat. I also cramp around my rib area whenver I turn a certain way or even laugh hard. Those are the worst. My doctor has be taking magnesium every day and it has help a little but the cramps are still bad when I am in the heat. It also seems like the more humid it is outside the worst my cramps get.
#25
Posted 26 July 2012 - 07:00 PM
My toes cramp so bad they stuck straight up and I could not move them. I would have cramps in the muscle in the back of my legs, I call em Charlie horses, that woke me up at nighttime. I stopped taking the One-a-day vitamin and I have very few Charlie Horses, now.
1 2012 CML detected Started Gleevec 400 mg
In nov 2014 my pcr started to rise by Feb I stopped Gleevec and went onto
2 2015 Tasigna 600 mg/day
I have been PCRU for 2 years and stopped Tasigna 4 7 2017
5 8 2017 results 0.008
5 30 2017 results 0.028
6 30 2017 results 0.3, I have restarted the Tasigna because it went above 0.1
My son
11 2011 CML detected Started Gleevec 400 mg
He went 2 1/2 years on gleevec and lost PCRU
Started Sprycel went PCRU for 2 years and stopped the Sprycel, went back for 3 month checkup and PCR was 8.0
He went back onto Sprycel and now is PCRU again
3 16 2017 results 0.008
6 1 2017 results 0.002
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