Dear Super,
Please calm down, I can tell you are in a panic right now. First of all I have had cml for 5 years now,and getting through the side effects at first can be rough.I started out on Gleevac and I was on it for 3 years, I had gi problems on it so my onc switched me to Sprycel 18 months ago. At first I got the SPRYCEL HEADACHE, boy it sure is nasty isn't it? Idiot that I am I started my Sprycel 2 days before thanksgiving, I knew I would have side effects, but no I had to be a smart ass, I couldn't wait, After my first pill the headache came and it felt like railroad spikes were being driven in my head, My husband ended up cooking the whole meal,our fanily was out of town so there was my husband, our little cocker spaniel, Annie and me. I couldn't even get out of bed. So Ron (my husband) and Annie (our cocker spaniel) both sat at our dinner table, candles and all and had a wonderful meal, Annie was more than happy to do ALL the dishes.
Sprycel headaches are very common when you first go on them. The first 4 or 5 days they gradually ease up,and ibuprofin liquid gel-caps got me through the next couple weeks,and they gradually eased up on their own.
Michael is using himself as a guniea pig and doing a great job at it, After his dx he did a lot of research,and he is working together with a very famous doctor about the healing properties of a supplement called cucummin (I cannot get that spelling in my head.
But he has been doing this trial with an onc. All along. So Michael will tell you not to substitute that c stuff without working with your onc I'm only writing this post in case michael misses it. I sure hope you can research this herb and see if it can interact with any other meds she is on, if it won't I hope it will help her. We all think Michael might be on to something,let's keep our fingers crossed, Sincerely Billie