New to ALL of this, even the forum type discussion board. Here is my story in a nutshell:
I am a 32 year old female, married with 2 kids (5.5 yrs and 2yrs) both boys. I am a very active and healthy girl even though I'm stuck at a desk all day . I workout at least 5 days a week and ran my first 1/2 marathon on February 5,2012. I am prone to upper respiratory infections and after my 4th in 13 months the PA at my Dr's office thought it would be a good idea to do a physical (god bless that woman). Then BAM, high WBC counts but not off the charts like i've seen others report (35,500). Same day, STAT more blood work and by 4:00 in the afternoon on April 10th my husband and I were back in the Dr's office with words like Cancer and Leukemia being thrown around. Two days later I went for a "consult" with a hematologist at my Dr's recommendation, more blood work, WBC's up near 40K now and next thing I know he is busting through my hip for a bone marrow biopsy (which I am sure y'all will echo "i wouldn't have my worst enemy go through that"). Anyway, fast forward a week or so and I have a confirmed PH+ CML diagnosis and started Gleevec 9 days ago. So far I feel alright, but it is like waiting for a volcano to errupt...or not! I have had a few headaches and the horror of a 7 lb weight gain in less than a week (probably water weight, but still), woke up one morning and could barely open my mouth because my jaw hurt so badly....but really not much to complain about except the obvious adjusting, shock, worry, etc. I am still exercising 5 - 6 days a week but I have backed off a little on the intensity and have dropped the weight a bit in conditioning...oh, and I'll wait a little bit before I head out for my next 1/2 marathon which I PROMISE with be the LLS sponsored event
Like I said, I'm healthy, I eat good and exercise, yadda yadda....so this was an earth shaking shock for my husband and I and also for the rest of our extended family. Here are some of my questions for those who know exactly what I am going through:
- Anyone else out there with a similar demographic to me? How has life changed for you, if at all?
- Those with Side Effects, How long after starting Gleevec did you experience your side effects?
- How stringent should I be regarding the potential for garlic to interract with Gleevec?
- Citrus, Green Tea, Garlic....what else should be avoided on Gleevec?
- How often does your DR check your WBC counts to evaluate the effectiveness of the drug therapy?
Thanks for listening and thank you for your feedback.