I was in hybernation last Nov Dec and Jan. Sleeping up to 20 hours a day, lost 25#'s, nauseated, night sweats, flu and colds. The third trip to family doctor, I finally got some bood work done, Jan 27th.. I ended up in the Hospital that night for the weekend, with WBC 180,000 and my platelets were 977,000. Diagonosed with CML. I was started on hydroxyurea 2000 mg and allopurinal. I had a BMB After 2 weeks WBC cells were down enough to start me on Gleevec 400mg. It was 8 long weeks with fatigue, slight skin rash, losing hair and diahrea.. At 8 weeks my WBC and platelets were back to normal. I feel good now, sleeping thru the night, eating good, and planty of energy back. I do get the puffy eyes in morning and ankles swell some by night time, and diahrea. I am taking just the Gleevec 400 now in the mornings.
I get a BCR-ABL with blood work next month. I will get numbers then of past and the present bood work. I have learned a lot thru this forum.
I had just found out about CML in Nov. My 40 yr old son had WBC 67,000. He had just started the Gleevec on Jan 19th. Does this run in Families?
