I had my visit with Dr. Talpaz. He is wonderful!! The doctor (I believe he was a fellow) that was with him was great too! I got all my questions answered and recorded the visit. I am so glad I did because I forgot a lot of the things he told me and came home and listened again. He told me that I am in a CCyR and a MMR and there is no reason to have a BMB at this point. He said perhaps in the future (maybe after a year or 2) to check things out but since I am doing so well and it's complicated for me that there is no need. I had PCR and FISH drawn. (funny how my previous onc said FISH couldn't be done on peripheral blood, eh?) and he said I can just follow up with my primary care physician and see him once every 3 months since I am doing so well. With insurance issues and all this other stuff I'm not gonna get into I may only be able to see him on an as needed basis and just follow up with my PCP and find a new oncologist close to me since I won't go back to the old one. Dr. Talpaz told me that the oncologist did well treating me because he put me on the correct medicine and ordered the right tests but I just don't like my old onc, his manner and some of the things he told me that turned out to be false.
He told me I am doing better than they would expect to see at 5 months on Tasigna and also that I have less than a 0.7% chance of the disease progressing. Tasigna is great.
Dr. Talpaz also said I can have Ibuprofen and Aleve and seemed confused that I was told I couldn't have these with Tasigna. They said since my platelets are normal that I can. I think I will still be cautious and stick to Tylenol but it's nice to know I can have one if I need one.
All in all, GREAT visit and AWESOME doctor!