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Dr. Talpaz is wonderful!


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#1 luvmybees24

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Posted 19 April 2012 - 05:57 PM

I had my visit with Dr. Talpaz. He is wonderful!! The doctor (I believe he was a fellow) that was with him was great too! I got all my questions answered and recorded the visit. I am so glad I did because I forgot a lot of the things he told me and came home and listened again. He told me that I am in a CCyR and a MMR and there is no reason to have a BMB at this point. He said perhaps in the future (maybe after a year or 2) to check things out but since I am doing so well and it's complicated for me that there is no need. I had PCR and FISH drawn. (funny how my previous onc said FISH couldn't be done on peripheral blood, eh?) and he said I can just follow up with my primary care physician and see him once every 3 months since I am doing so well. With insurance issues and all this other stuff I'm not gonna get into I may only be able to see him on an as needed basis and just follow up with my PCP and find a new oncologist close to me since I won't go back to the old one. Dr. Talpaz told me that the oncologist did well treating me because he put me on the correct medicine and ordered the right tests but I just don't like my old onc, his manner and some of the things he told me that turned out to be false.

He told me I am doing better than they would expect to see at 5 months on Tasigna and also that I have less than a 0.7% chance of the disease progressing. Tasigna is great.

Dr. Talpaz also said I can have Ibuprofen and Aleve and seemed confused that I was told I couldn't have these with Tasigna. They said since my platelets are normal that I can. I think I will still be cautious and stick to Tylenol but it's nice to know I can have one if I need one.

All in all, GREAT visit and AWESOME doctor!



#2 Susan61

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Posted 19 April 2012 - 09:36 PM

Hi Laura:  I am so happy for you, and I had such a strong feeling that he would tell you that the PCR was good enough to get the necessary information.  Now that you know where you are, you can find that local Oncologist to follow-up your care.  When my Oncologist retired, and I went to see the new doctor.  I told her right away what the protocol was that I was doing , which was regular blood work every 3 months.  Then a regular blood test with a PCR in 6 months,followed up by a visit at the 6 month blood test to discuss everything and be examined.  She did not even hesitate to say it was fine with her to continue with the same treatment as my original Oncologist.  That was good that you recorded your visit, so you can refer to what was discussed.

     I hope your feeling some relief now.  I know you were on pins and needles hoping for the answers you got.

     Just continue now with what you have been doing, and I am sure you will do very well from this point on.

     Maybe somebody else lives in your state or area that can give you the name of a good Oncologist.



#3 Guest_billronm_*

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Posted 20 April 2012 - 02:50 AM

Hi Laura,

   Oh, I'm so happy for you. It's a shame we have to go through this anxiety, for so long until we see a specialist to ease our minds. It's downright cruel what they put us through with all the waiting and waiting. That's more stress than dealing with our illness.   But even though it's almost 4:am I'm doing the happy dance for you!  You can give me a wake-up call at 2:pm tomorrow. We're painting our living room,sounds so easy but still have to clean everything else in there first.   Shampoo furniture,carpet etc. It never ends, does it?     Sincerely Billie






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