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What were you doing 10 years ago today?

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#1 Stevea


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Posted 19 April 2012 - 06:58 AM

I was being admitted to Moffitt Cancer Center and diagnosed with CML 10 years ago today!

#2 janne



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Posted 19 April 2012 - 05:16 PM

What a great thing to celebrate, that you are ten years out from your diagnosis !! Congratulations on being a ten year survivor !!!

Dx'd: 8/2008. Started Gleevec 400 mg 11/08. 

Drug break 2011.

Started Tasigna 4/11 450 mg.

Reduction to 300 mg Tasigna 1/2012.

PCRU 9/2012.

12/2012 Detectable.

PCRU 4/2013 through 3/2015. (Reduced to 150 mg 7/2014)

12/2015  ? slightly detectable at probably less than 0.01% per Mayo Clinic.

4/2016 PCRU. Still at 150 mg Tasigna.


CESSATION: stopped treatment 7/20/2017. 

9/6/2017:  barely detectable at 0.01%. 

12/11/2017: PCR at 0.09% (did not do the monthly PCR testing.) 

12/18/2017: Inevitable call from Onc. Started back on Tasigna at 150 mg. (Considering Sprycel low dose.) 

#3 valiantchong


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Posted 19 April 2012 - 09:17 PM

Good to know you have a successfull treatement..have many many decades more to come.... Wondering if your doc has any dosage reduction trial... Are u still on 400 mg ?

#4 Stevea


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Posted 20 April 2012 - 07:40 AM

Thanks!  Yes i'm still on 400 mg of Gleevec.  I have no side effects so I do not mind staying on the 400 mg's.  My Doc just retired so my next visit I will be meeting my new doctors and will get to hear what he has to say.

#5 LivingWellWithCML


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Posted 20 April 2012 - 05:23 PM

I am absolutely ecstatic over your journey ... Steve, you are da man.  Congratulations on such a successful treatment path.  You give me (and I'm sure many others) so much hope.  Thanks.   My kids will be 19, 17, and 15 when I reach your point.........I feel more confident about that future state after reading your post.  I really appreciate it, and am very happy for you!

Dan - Atlanta, GA

CML CP Diagnosed March 2011

Gleevec 400mg

#6 Susan61


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Posted 20 April 2012 - 11:11 PM

I want to give my Congratulations to Stevea on 10 years, and you will have many more.  I am glad this posting encouraged you Dan as you think about the ages of your kids.  You will go beyond the 19 17 and 15 with all that is being done now for CML.  You have every right to feel confident.

I like Stevea have done very well on Gleevec.  God Willing it will be 14 years for me this December of surviving CML, but only been on Gleevec for 11 years.

I always say that something else will kill me before my CML will.  Just take each day as it comes, and enjoy your family.

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