I was diagnosed with CML in March of 2009 and have had great results with Gleevec. I went into remission within 9 months. Now it's it's just a bit of a pain in the but. Most of the side effects have passed and what's left are minimal. I check in here from time to time, but mostly like to forget I have CML since it's possible to do now, except for the daily taking of the pill. I also participate in the Thursday evening chat board sponsored by LLS.
I recently self-published my first novel and I'm working on the second which is centered around a young woman named Julie who is diagnosed with CML by chapter 3 or 4. I'm thinking I might want her to have a Stem Cell Transplant. As someone in her 50s, my onc hasn't mentioned that as a treatment option. I'm wondering if anyone who has had a Stem Cell or Bone Marrow transplant would be willing to share your experience about the procedure, the impact on your life and those of people close to you, your emotional journey, etc. It won't be the focus of the plot, but an important part of her journey and that of the man who wants to marry her. I want the treatment of this topic in my novel to factual and realistic so as not to misguide anyone who may find themselves in the same situation, in addition to informing the casual reader.
If you think you would be interested in sharing your story, I'd appreciate it. You can respond here and we can make arrangements to share here or any other way it would be comfortable for you. Men are welcome to respond, too, since I assume the process is the same for everybody.
Thanks for your interest, and I look forward to hearing your story.