17 replies to this topic

[PhilB]

I was phoned at work by my onc this morning to confirm that I'm still bobbling along at about 3.5 log reduction.  I'm 3 years in now and I've been more relaxed about waiting for the numbers than at any time previously - to the extent that when my onc forgot to phone with the results, I didn't even bother chasing her until I happened to bump into her out shopping at the weekend.  Otherwise I'd probably have just waited until the next appointment in May.  How laid back is that?  On the other hand, as soon as I put the phone down this morning I became a gibbering wreck, as usual.  Ho hum.

I've been trying to forget about CML completely in recent months, hence the fact I'm not on here so much nowadays.  It's generally been working well and I've largely reached the point where I'm used to my 'new normal' with the side effects and no longer define myself in terms of my disease.  I even got so blase that I stopped religiously writing on my Glivec box when I started each blister pack and double checking that I was up to date with my tablets each night before bed.  Eventually I did weaken and do a count back all the way to when I last wrote the date.  This revealed, after about 5 recounts,  that I must have taken my tablet twice one night...

Anyway, my traditional sushi lunch has been consumed, my wife has put a bottle of something fizzy in the fridge and now I somehow have to get sufficiently enthused to pretend to do soem work this afternoon.  Best wishes to all those out there waiting for results.  May all your numbers be little ones.

Phil

[hannibellemo]

Congratulations, Phil! I'm very happy for you! Please say "hello" to the family - I think about you all often and replay my fond memories of how kind you all were to the "Pats" and how much fun we had.

Pat

[PhilB]

Thanks Pat.  I have to say that a particularly favourite memory for me was when I picked you up at the station and you tried to get in the wrong side of the car.  The 'What's this steering wheel doing here?' moment was priceless

[Skittles]

Doing a Happy Dance for you Phil!  Skittles

[CallMeLucky]

Seems like we are in the same boat - I guess we'll take turns rowing.

Glad to see your stable results.....

[Judy2]

Hi Phil,

Congratulations. Wishing you many more years of MMR.

Judy

[hannibellemo]

That is so funny, Phil, because I just thought about that too! I remember thinking at the time, "Well, this obviously isn't going to work!"  (American polite for WTF?) I still get a good laugh at myself over that!

Pat

[Cathy]

Congratulations Phil !

Celebrate tonight!  Also doing a Happy Dance in your honor!

Cathy

[Marnie]

Congrats.  Am doing the happy dance at half speed since we're visiting the 93 year old in-laws in NC. Off to the coast tomorrow will do a full speed happy dance with the crabs and seagulls for you tomorrow

Marnie

[GerryL]

Hi Phil,

Congratulations on your results. Can't say how much you and Trey helped me out when I first signed up on this site. Hopefully you won't be a too much of a stranger to the site as the humour you bring brightens up a lot of people's day particularly when they are struggling.

[Lizzybee]

Thanks for sharing the good news!

[Happycat]

Good for you, Phil!  And nice to hear you have adjusted and can almost forget this disease. Just don't forget those pills.  Did you have a night when you think you might have had the double dose?  Perhaps it was not a bug on the leafy greens from the garden after all.

I write date I start a new script right on the bottle so I can keep track. At least that way I can limit my OCD counting to 30. I was chagrined to find this last month that they now put clear tape on the bottle, which causes my Sharpie marker to rub off over time. Guess I have to start marking the calendar now.

Traci

[Pin]

Hey Phil - that's great news that you are still at MMR. Even better that you were feeling ok before the test at the very least. I felt slightly less stressed about my test this time (except for the point where I was in the office waiting for the words...it feels like I am waiting to be told that I have either won the lottery or being led to the guillotine), mind you I've only had 3 tests to wait for so far so I imagine it will change as I go along. Also, a sushi lunch sounds like a great tradition!

[Tedsey]

Great news!  So happy to hear it!  Like how you are getting more relaxed about it.  I am sitting on pins and needles right now.  Cannot wait to get to where you are (anxiety-wise, but I sure would take MMR!).

All the best, and long life to you!

Tedsey

[GerryL]

Hi Teds,

Keeping my fingers crossed for your results.

[Susan61]

Congratulations Phil:  You are handling your CML, like we all should.  One day at a time, and not dwelling on it to the point where you get yourself so worked up on every time your tested.  After all these years, I still wait in anicipation till I get my call with my results, and then I make her Fax me a copy so I can read all my numbers myself.. Hope we hear from you more often.  Enjoy the nice weather thats coming.

[PhilB]

Thanks to all, and fingers crossed for all those waiting on results.  We probably have enough people on here that, if everyone posted their good results, the happy little dance could be the latest workout craze to sweep the world.

I'm pleased to say that the nice weather has already arrived in the UK - we even spent the day at the beach on Sunday (although I had to scrape ice of the car on Monday morning!)