I'm newly diagnosed as of this month, and I'm still in the feeling out process. I'm gradually getting my head around this, but I have more questions than I have answers. I just got off the Hydrea a few days ago, and I'm glad because it didn't really agree with me. Now I'm just taking the 400mg of Gleevec daily and things are going really well. I don't think I have any real significant side effects from the chemo at the moment, other than minor edema around the eyes in the morning, some annoying short and long-term memory loss, and difficulty staying focused at times. I had some dizziness, trouble sleeping, ear popping, nose bleeds, minor rashes, lost my sense of taste, and had my hair and nails stop growing during initial treatment, but those things have returned or are returning to normal, except for the sleep issues. I think it was the stress combined with heavy doses (4000mg) of Hydrea that did that, because I feel a lot better the last few days since my WBC fell to normal levels and they took me off the Hydrea.
• I would like to know what time of day people are taking their TKI pills to reduce the side effects they may be feeling? Any observations that may be helpful to the newly diagnosed would be appreciated.
BTW, I'm 29 and in good health otherwise.