I've discovered over the past few days there is not a lot of info on management of drug induced pleural effusions. Even the Sprycel package insert talks about normal management of pleural effusions but they really don't give specifics.
At least one or two of you have mentioned taking steroids to reduce PEs or other obnoxious side effects from these damn drugs (and I say that in the best way possible) or any other reason you may have been taking it, so how did you do it? I don't think I'm going to like this but tomorrow should be the worst day. Yes? No?
My doc is back from spring break and called me this afternoon to see how I was doing. I take back every nasty thing I said earlier in the day. He was surprised to see how much the PE had grown, He said it looked like it was about a 1/4 way up the pleura - (I almost wish he hadn't told me that) and that I have another tiny one on the left side. I really wish he hadn't told me that, but I don't seem to have any symptoms from that one yet (but I do have an excellent imagination)!
He doesn't have many Sprycel patients and I was his first one, Dr. L is out of Mayo for the day so I guess we're going to try this. I'm taking low dose lasix (20mg.) for the next three days, not for the PE, he definitely doesn't think this is edema related, not with the inflammation I have in my pleura causing all this pain, but mostly to manage any edema from the steroid. My dad took steroids for rheumatoid arthritis and I don't remember him ever having a moon face, etc. Hopefully, I inherited this trait from him.
My husband said he took a pack for severe poison ivy and he never felt better in his life. He wanted to be on steroids forever.
Anyway, thanks for your support, I really don't think I could do this without this board - you give me courage. Just so you know, this is mostly tongue in cheek - not the courage part - that's not to say I don't have any neuroses. but I'm not that neurotic - really!
Since I can't really do anything with much exertion I've downloaded Stephen King's new novel to read this weekend.