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According to this report we shouldn't be taking PPIs and certain other drugs with Gleevec...


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#21 Guest_billronm_*

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Posted 20 March 2012 - 09:35 PM

Dear Susan,

   I'm so sorry you're having such a bad time. I wish I lived closer,I'd give you a big hug. Instead i'm sending you a virtual extra big hug. You are so special, you're always right there welcoming a new member or comforting us when we need it. You have so much on your plate right now, cml, arthritis, financial problems, and I know you're always doing something for your family. No wonder you're having panic attacks. They are so terrible, i've suffered from them for years. If I feel one coming on I try to get up and do something, that very seldoms works,so I'll take a xanax and call somebody, usually my sister, if she's not home I'll call a friend. Just talking to someone for a few minutes helps me take my mind off of it. I take cymbalta as an anti-depressant, but it is also good for pain. I think that's why I don't have a lot of trouble with bone pain. I've been on it almost 5 years now, and I think it helps me quite a bit. It wouldn't hurt to ask your pcp about it. Try to put yourself first for a change and maybe you'll be able to handle your stress better. And you'll feel better.     Love Billie



#22 pamsouth

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Posted 20 March 2012 - 09:46 PM

HI Sweet Susie,  I have really appreciated your post, I mean that!

Life can be unfair and sometimes sucks. From 1 cancer survivor to another, it seem like it lurks, sometimes outwardly, and sometimes hidden as though one forgets for a time. Praying for God to meet your needs spiritually, physically, mentally. I have had 5 intro to massage classes, actually I have had 2 clients I worked on, 1 was my neighbor, the other was a class mate. I am in the process of fixing up the front bedroom into a massage room, it is looking wonderfully serene. It help calm the soul, with beautiful pictures, flowers, candles, water fountain, an aromas.  My husband painted the walls with a warm butterscotch. Will go to the basement and look in some boxs, should have some lovely angels and things. My basement is full of hidden treasures. I am not certified yet, but I am hoping to do a few massage a week (not able to do many, my bones hurt) to raise money for cancer, and also to give free massages to cancer survivor or those with devastating illness.

If we closer I would give you a massage anytime!!  I promise I will get better as time goes on, but I need some practice, so I am looking for bodies, ha!

Take Care of Yourself!!

Hugs xoxo PamSouth


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#23 Guest_billronm_*

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Posted 20 March 2012 - 09:56 PM

Dear Pam,

  You can have my body, nobody else wants it!  luv Billie



#24 Judy2

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Posted 20 March 2012 - 09:56 PM

Hi Susan and Pam South,

Susan, I sent you a private message.

Pam South, please let us know how your blood work turns out, I'm praying all will be well and there will be no need for  you to change meds as I know that is something you do not want to do.

Hugs to both,

Judy



#25 pamsouth

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Posted 20 March 2012 - 10:32 PM

My, My, My, Billie,  Whatever can I do for YOU. Yes, Yes You would love my Serenity Room.

I like to call my massage room, the "Serenity Room."

Come smell the lilacs and enjoy the flowers, music and low lights with bubbling fountains, a plants.

Smell the wonderful aroma of lilac, take a deep breath, very deep, all the way to the soul.  Breath out slowly all the bad, negative, stuff.  Fill your pretty little head with beautiful thought and go off somewhere peaceful! Give yourself a little indulgence, not suppose to have any whine, as you are suppose to drink water to remove the toxins, oh what the heck, maybe just a couple of oz,

Bring your troubles and leave them when you go, Poof/gone! Sweet Dreams to leave with.

Dance as though no one is watching, Love as though you have never loved before, sing as though no one can hear you, Live as though heaven is on earth.

LIVE, LOVE, AND DON'T FORGET TO LAUGH.

HUGGS TO ALL, I LOVE YOU MY SPECIAL ANGELS!!

PAMSOUTH


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#26 Guest_billronm_*

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Posted 20 March 2012 - 10:38 PM

Dear Pam,

  That was wonderful, I think I'm Cured!  Love Billie



#27 pamsouth

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Posted 20 March 2012 - 11:38 PM

My Special Judy,  I sent you a reply and poof my pc went into outerspace and just returned.

Not sure exactly what I said, no problem, my brain is still on a roll.

Oh yes, Thanks for asking about my labs.  I am anxious to hear, whether it be good or bad.

They took 5 vials of blood, as testing for other stuff, lets see; CBC, CMP, FISH, BCR/ABL, CYTOGENTICS, PCR FOR BCR/ABL.  I think he said the FISH AND PCR only look for BCR/ABL but he was going fishing looking for other things.  I think basically that is because I am his new patient, and he is enthralled with doing a good work up.  Yep he is one of those kind of doctors, very through.  He also said I don't like switching around on these TKI unless there is a very good reason!!  Yep my kind doc!!  He is even trying to raise $50,000.00 for LLS, that's my DOC!!!  I am pretty happy to officially be a patient of one of the top #1 Cancer Center of Indiana University Simon Cancer Center.  I'm in the hands of 1 of Top CML Oncologist Expert of  Indiana, just 15 miles away.  interestedly enough he mention he just took on another patient complaining about some of the same things I was.  one is sending the PCR out of state, and results looking very inclusive and doc's changing TKI at the drop of a hat. Now there was some of my paraphrasing or embellishing, a little.   He is pretty dog gone intelligent, so far, that is!  I will call in about a week and have them mail the results to me.  I have another appointment in a month for more test. Then the good doc will give me the verdict of what is going on and my choices.   Pretty cool, to feel I can rest now, even if it is not good news, at least I'm going to someone who knows his stuff, in fact I am sure if he was a good specialist he wouldn't be at Ind University.  Maybe things worked out for the best, me and the old onc having that little tiff, or difference.   You know that little inner voice you hear sometimes, like you are wrestle with something and this inner voices keeps trying to say shut up and listen up, now!!  Well you got to listen to it, that voice is trying to tell you something. I just got to get in a place where I can hear, what my heart is saying.

I don't know why, but I feel good today!  Indiana went from winter to summer, it's about 81 degrees out today.  it feels good to feel the sunshine and wind blowing thru my hair.  The kids are out playing.  When I walk by they yell for my poodle Mr Herchel, he is 20lb and looks like a young pup, he acutally 6 years.  You know like me  64 years going on 39, just a young chick.  Ahh to be young and deeply in love again.  Got a girl on my facebook who just got married, she is still up in heaven. I told her to stay up there as long as she can........

She is still pinching herself MRS.... 

Got my Seniority Room almost done, got to wait up to 10 days to get my throw carpet in, got hardwood floors, so didn't want to totally cover them up. Actually my secret is this,  I am taking "Intro to Swedish Massage Class, to teach my husband how to give me massage, pretty cool huh.  Yea I got him going pretty good on those shoulder blades.  You know you just lay face down, fold a towel put it under your shoulder, then have him take two or three finger in a friction circular motion go up the shoulder blade, until he comes to a knot, then just do the circular friction motion, until I tell him to stop, oh yea and just the right pressure.  He is pretty good.  Problem is he get tired, before I tell him to stop! 

It is after midnight got to get my beauty rest. Another sunny day tomorrow!  Tomorrow I am going to my chiropractor nd they give me TLC!  Yes they do, cause I got them trained too!!

Oh, I got another plan, too.  Like I learn how to do massage then I use it for barter.  Like a need a cleaning lady, and a sewing lady, etc.  You get the picture.

Sending hugs xoxo

PamSouth


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#28 Judy2

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Posted 21 March 2012 - 09:32 PM

Hi Pam South,

I am so glad you are happy with your new onc, it sounds as if you are in good hands.  I especially like the fact that he is not quick to switch meds as I know that is something you were opposed to. I remember you saying you were watching us Sprycel people to see if we grew horns (sorry Pam M) or anything. Please let us know how your labs turn out.

A great idea about bartering with your new massage skills. I wonder how far you could take that? I hope you have another happy spring day tomorrow. This is crazy weather for March but nice to be able to put on sandals instead of boots.

Hugs,

Judy



#29 pammartin

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Posted 22 March 2012 - 06:19 AM

The flip flops are officially out, even if it snows ten feet, I will be wearing them, once I break them out of the closet, they do not get put back in! 






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