I was dreading my most recent PCR test. I was bracing myself for the possibility of "less than good news". In mid-January, I had surgery to remove part of my colon and there were lots of complications. I was hospitalized and unable to take Gleevec for a couple of weeks. I met with my oncologist recently and I graduated from MMR to PCRU. Haven't stopped dancing and celebrating (glass of wine) since!
Doing the PCRU Happy Dance ... When I least expected it!
Posted 14 March 2012 - 07:28 PM
Congratulations nathaliece ..that is deifnitely something to celebrate !! I wish you many more opportunities to happy dance with continued maintenance of your PCRU status ! yahoo !
Dx'd: 8/2008. Started Gleevec 400 mg 11/08.
Drug break 2011.
Started Tasigna 4/11 450 mg.
Reduction to 300 mg Tasigna 1/2012.
PCRU 4/2013 through 3/2015. (Reduced to 150 mg 7/2014)
12/2015 ? slightly detectable at probably less than 0.01% per Mayo Clinic.
4/2016 PCRU. Still at 150 mg Tasigna.
CESSATION: stopped treatment 7/20/2017.
9/6/2017: barely detectable at 0.01%.
12/11/2017: PCR at 0.09% (did not do the monthly PCR testing.)
12/18/2017: Inevitable call from Onc. Started back on Tasigna at 150 mg. (Considering Sprycel low dose.)
Posted 14 March 2012 - 07:37 PM
Congratulations, nathaliece! That is wonderful news!
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Posted 14 March 2012 - 07:44 PM
Congratulations - may you have continued success with your PCRs.
Posted 14 March 2012 - 10:33 PM
Congratulations Nathaliece, wishing you nothing but PCRUs from now on.
Posted 14 March 2012 - 10:54 PM
That is super duper news! Congratulations : )
Be alert, but not overly concerned.
• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week
• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)
• Oct. 28, 2008: CML confirmed, start Gleevec 400mg
• Oct. 31, 2008: sent home when WBC reached 121k
• On/off, reduced dose Gleevec for 7 months
• April 2009: Started Sprycel 100mg
• Sept. 2009: PCRU 0.000
• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)
• Currently: still steady PCRU, testing every 6 months 🤗
— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!
Posted 15 March 2012 - 12:08 AM
Congratulation... next dance towards the possibility of 'functional cured'....
Posted 15 March 2012 - 07:58 AM
Congradulations! Outstanding news!
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
Posted 15 March 2012 - 10:28 PM
Hi: Hope all is okay with the colon surgery, and Congratulations on your PCRU status. May you continue on the road to have many many more good results.
Posted 26 April 2012 - 12:22 PM
Congratulation... may I know what you daily dosage ? do you have any plan to reduce or there is any chances to dose reduction plan for you by your oncologist...what is your next plan of good response.
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