I was dreading my most recent PCR test. I was bracing myself for the possibility of "less than good news". In mid-January, I had surgery to remove part of my colon and there were lots of complications. I was hospitalized and unable to take Gleevec for a couple of weeks. I met with my oncologist recently and I graduated from MMR to PCRU. Haven't stopped dancing and celebrating (glass of wine) since!
Doing the PCRU Happy Dance ... When I least expected it!
Started by
nathaliece
, Mar 14 2012 07:15 PM
16 replies to this topic
#2
janne
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Posted 14 March 2012 - 07:28 PM
Congratulations nathaliece ..that is deifnitely something to celebrate !! I wish you many more opportunities to happy dance with continued maintenance of your PCRU status ! yahoo !
Janne
Dx'd: 8/2008. Started Gleevec 400 mg 11/08.
Drug break 2011.
Started Tasigna 4/11 450 mg.
Reduction to 300 mg Tasigna 1/2012.
PCRU 9/2012.
12/2012 Detectable.
PCRU 4/2013 through 3/2015. (Reduced to 150 mg 7/2014)
12/2015 ? slightly detectable at probably less than 0.01% per Mayo Clinic.
4/2016 PCRU. Still at 150 mg Tasigna.
CESSATION: stopped treatment 7/20/2017.
9/6/2017: barely detectable at 0.01%.
12/11/2017: PCR at 0.09% (did not do the monthly PCR testing.)
12/18/2017: Inevitable call from Onc. Started back on Tasigna at 150 mg. (Considering Sprycel low dose.)
#3
hannibellemo
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Posted 14 March 2012 - 07:37 PM
Congratulations, nathaliece! That is wonderful news!
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#4
GerryL
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Posted 14 March 2012 - 07:44 PM
Congratulations - may you have continued success with your PCRs.
#5
nathaliece
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Posted 14 March 2012 - 07:46 PM
Thanks Janne, Gerry and Pat!
#7
Judy2
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Posted 14 March 2012 - 10:33 PM
Congratulations Nathaliece, wishing you nothing but PCRUs from now on.
Judy
#8
ChrisC
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Posted 14 March 2012 - 10:54 PM
That is super duper news! Congratulations : )
Be alert, but not overly concerned.
• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week
• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)
• Oct. 28, 2008: CML confirmed, start Gleevec 400mg
• Oct. 31, 2008: sent home when WBC reached 121k
• On/off, reduced dose Gleevec for 7 months
• April 2009: Started Sprycel 100mg
• Sept. 2009: PCRU 0.000
• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)
• Currently: still steady PCRU, testing every 6 months 🤗
— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!
#9
valiantchong
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Posted 15 March 2012 - 12:08 AM
Congratulation... next dance towards the possibility of 'functional cured'....
#10
tiouki
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Posted 15 March 2012 - 03:11 AM
Woua that's great congratulations !
#11
Cathy
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Posted 15 March 2012 - 07:58 AM
Congradulations! Outstanding news!
Cathy
Cathy
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
#12
pammartin
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Posted 15 March 2012 - 08:04 AM
Doin' the happy dance with you!
#13
Tedsey
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Posted 15 March 2012 - 11:14 AM
How wonderful! What great news. Congrats!
Teds
#15
Susan61
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Posted 15 March 2012 - 10:28 PM
Hi: Hope all is okay with the colon surgery, and Congratulations on your PCRU status. May you continue on the road to have many many more good results.
#16
valiantchong
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Posted 26 April 2012 - 12:22 PM
Congratulation... may I know what you daily dosage ? do you have any plan to reduce or there is any chances to dose reduction plan for you by your oncologist...what is your next plan of good response.
#17
CindyS
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Posted 26 April 2012 - 07:04 PM
Congratulations!! Unexpected good news is the best!
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