I'm feeling sorry for myself so, of course, who do I turn to for sympathy? All of you lucky people! So far in the past 5 days I have had an echocardiogram, ProBNP blood test, and today I had a chest CT. Anything cardio was perfectly normal; the CT was to rule out pulmonary embolism, because evidently my pain and shortness of breath levels were out of whack with what the x-ray showed as a very small pleural effusion. My uneducated guess (I left my MD license in my other purse) is I'm in more pain because I'm so short waisted that there is no place for the fluid to go except to press on whatever boney process is in the way! (Thank you, Mom) Otherwise, I have a pretty high pain tolerance, I went through a spleen infarc before dx and didn't call the doc or go to the emergency room because I had just seen my PCP that afternoon so what could possibly go wrong? How's that for denial? BTW, my CT showed a moderate pleural effusion, but I have no way to correlate that to the x-ray but since my pain increased, I assume the amount of fluid did, too.
So, anyway, I met with one of the medical oncologists, my normal doc is on vacation, and he agreed that I should stop the Sprycel until this resolves and try a lower dose at that time. If I don't see any improvement in 5-10 days I'm going to press for some prednisone to help it along.
He gave me Tramadol for the pain because I hate narcotic pain killers. Can you say "terminal constipation"? But really, what's the diff between narcotic-like and narcotic? Anyone else taking/taken this? What can I expect?
So the bad thing is I'm off Sprycel. On the other hand, the good thing is, I'm off Sprycel! I intend to savor every pre-CML normal feeling day I have!
Thanks for listening to my rambling; I'm very aware that there are many of us out there who are going through much more than I and I keep you in my thoughts and heart every day!