Hi all, I am new to all of this and more than a little freaked out. My 29 year old daughter was recently diagnosed with CML after being rushed to the hospital a couple of months ago. After she was released she started on 100 mg of Sprycel. We heard and good things and were thrilled when her numbers began to drop.....but then they didn't stop dropping. Her platletes dropped hard and fast, whereas her white count dropped also her platletes went dangerously low. Sprycel was stopped but everything continued to go lower. Finally it stopped and her platletes started to rise. She went almost a month medication free and now we are trying Sprycel at 80 mg, after a week her platletes have begun to nosedive again, her white count which was good is now rising. We had such high hopes for this medication.
Has this happened to anyone else? What was the outcome? I would appreciate any advice, trying to be positive but honestly scared to death.