I'm looking for a little advice.
I am on Tasigna, started 12-15-11. Having good results. Numbers went a little too low so 3 weeks ago onc put me on half the dose. I was on 300mg 2xday. Now on 150mg 2xday for total of 300mg. I feel like a new person. Side effects almost gone. Fatigue from a 7 to a 2, scalp sensitivity from 8 to 2, rash and pain on face from 5 to a 1. In these 3 weeks numbers flattened out pretty well. Here's a few specifics:
December: WBC 18, Platlets 635
3 weeks ago WBC 3.0, Platelets 82, ANC 1.86
Now: WBC 2.93, Platlets 110, ANC 1.6
(Have yet to get a follow up FISH or PCR.)
So my onc wants me to continue this dose for 2 more weeks with hope of raising it back up.
Getting to my question: Seems to me that many specialists in the field are willing to put one on a lowered dose while local oncologists are not. I did see a specialist for one visit at Hopkins whom I can contact for consultation. An earlier thread posted a link to a presentation from the 2011 ASH meeting, http://ash.confex.co...Paper44523.html that describes great results from reduced doses on Sprycel and Tasigna.
QUESTION: DO YOU HAVE ANY ADVICE FOR ME IN MY DISCUSSIONS WITH MY ONC TO HELP CONVINCE HER THAT STAYING AT A LOWERED DOSE MAY WELL BE ADEQUATE?
Thanks in advance for any help, both in facts and hints on how to communicate.