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I got my 6-month pcr result today -


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#1 Lizzybee

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Posted 25 January 2012 - 05:02 PM

My pcr is 0.6%, compared to 2.4% at 3.5 months and 1.8% at 2.5 months.  I was concerned that it would be high because I've been feeling so crappy for the past 7 weeks, so I was very relieved that it's going down. 

I had more blood drawn to check my iron and thyroid because I can't seem to shake this fatigue.  I'm used to cycling up and down, but this is the longest I've been down since August.  My hgb is 11, down from 12.4, so that could be part of the problem, although 11 is not all that low.  My thyroid (TSH, T3, T4) was normal in June, and I will be surprised if it changed much since then.  But I'm glad my onc is trying to get to the bottom of it instead of telling me that I have cancer and shouldn't be surprised to be fatigued.



#2 hannibellemo

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Posted 25 January 2012 - 05:46 PM

Congratulations, Lizzy!

I'm glad your onc is working on you but your fatigue may just be a side effect of your TKI. Hopefully it will improve as you get further along in your treatment and your body adjusts and your counts stabilize. Unfortunately, for some fatigue remains their major complaint and it is generally not the cancer it is the TKI.

It's early days yet for you so don't get too discouraged with the fatigue.

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#3 lrock

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Posted 25 January 2012 - 06:39 PM

Congratulations!!  Hopefully things will just continue to get better for you! 



#4 Judy2

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Posted 25 January 2012 - 07:04 PM

Hi Lizzybee,

Way to go!!! I am so glad you got good PCR news. I'm also glad your onc is trying to get to the bottom of your fatigue. If it is a side effect of the TKI I'm hoping your body will adjust in time. Keep us posted,

Judy



#5 tiouki

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Posted 26 January 2012 - 05:38 AM

Hello, congrats for the great results!

About your fatigue I think it's totally caused by the mild anemia your have.

My normal number is 14. At 12 I'm good. 11 tired. 10.5 very tired. Everyone is different but I think this can explain how you feel.

If it can help my doctor gave my erythropietin injections (2 of them) that helped a lot to deal with the transient myelosuppresion I had. It's harmless and quite effective (even though you have to monitor your blood counts for the red cells to not to exceed 14 )

Pierre



#6 Pin

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Posted 26 January 2012 - 07:48 AM

Congratulations on the PCR! Great news :) It's really good that your onc is checking stuff out for you - I think it's always worth ruling things out! Also, I don't think 11 is all that low (for a female at least)?


Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

 

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01 

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14





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