Judy,
Yes, we did the ceiling ourselves. My mother in law helped also, we tried to keep her off the ladders and only holding the insulation, but she was a great help, didn't have to keep getting up and down the ladder to guide it through the wires and lathe/plaster from the old ceiling.
I guess a person doesn't get a call unless there is a problem. I have been reading more about members and Sprycel side effects, Marnie, I am completely jealous!, but glad you are fairly side effect free ( won't touch the gas issue or I might be here for another hour just dwelling on potential situations ) dealing with CML is bad enough most times, side effects just plain suck. Now speaking of side effects, I have several interesting things happening. I have been back on the 140 mg for about 5 1/2 weeks now, I didn't get up to look at calendar, but when I jumped from 100 mg to 140 mg I had almost nothing, (after the initial beginning on 100 mg in October with the severe headaches, neuropathy, joint/bone aches, and tiredness). Now I find myself reverting, I am having headaches, not as severe, but they are definitely Sprycel related, I am incredibly tired, my face has a nice start of dry red patches on my cheeks and between my eyes, and lo/behold my hair is honestly falling out by the handfulls. I had noticed some shedding but in the past several days the sink is full, my pillow looks like my pups were sleeping on it (they are but wrong colors) and even my clothing around the neck area is loaded with hair. Each one has the follicle attached, so I know it is coming from the root. No one is yanking on it, so I have to put it down to Sprycel. I do apologize to anyone/everyone I wrote to in the past, stating the hair loss is not that bad for me, I have several very thin spots and in another week or so strategic comb-overs will not hide the bald spots. I go back and forth about the hair thing, in reality it is such a non important thing, but vanity, even at 49, seems to be present. One thing I am holding on too, from my reading, hair begins to regrow in about three months, well I am well into the first month of Sprycel, so perhaps in a few more weeks I will begin to do a turn around and as the hair begins to grow again, it will not bother me so much. I am not sure why the side effects would begin again now, one of the things many people including myself note is we do not know exactly what/how these drugs are affecting our bodies in other ways. Can't say I am all that excited about the reoccurrence, but the alternative is several illness and demise, so I shut up and move along. One item I have found quite interesting (remember psychology major here), although many have noted my 140 dose of Sprycel is very high, I worry about what would happen if I went back to the 100 mg, because in the beginning it did not work for me. I would love to get to 50 mg or even 20 mg daily for maintenance med, but somehow because of my rocky start I am not sure that is in my future. Time, that lovely, frustrating, annoying, scary word is what has to happen, if I reach milestones and have a positive response in time, perhaps it will be possible to lower the dosage and still destroy the CML cells, but right now, am nervous as hell because if I am lowered due to blood work or other reason, then the worry the CML will begin again to take over is front and center (yeah, like it isn't there now). I am off to bed, not going to turn on the light, don't care how many hairs I lost during my three hour nap this afternoon, wouldn't matter if I did, they would still be there.
Judy, you said it best, stupid chromosomes!
