I'm seeing my onc, the one who wanted to up my dosage of sprycel, tomorrow. He kept the PCR test scheduled even though I didn't change my dosage. Which is good because this will be the last time I see him before he moves and it will be nice having a more recent test for my new onc. I'm hoping my numbers went down again, just to say, "See I am responding well!" I've been searching Trey's blog and here for questions and things in case he gives me a hard time again. I am trying not to stress to much about it since I'm fighting a flu bug my eldest daughter decided to share with me!
Well in one month my PCR went down from 0.5 to 0.407. not much but still going down. I asked my onc if he did a FISH and he only did one at diagnosis. He is fixated on the PCR #'s He wants me to get to 0.00000 as fast as possible. He tried to push for a higher dose again, but was at least respectful that I declined. I see my new onc in 6 weeks.
Kim