Ok my wise CML family, few questions for the latest developments. Just quick recap so past reading is not needed, after two and half weeks of 140 Sprycel and 2000 mg of Hydrea daily, the platelets did come down, but boy they hit the lows along with the white count. Last Monday they had risen to 100,000 and white count was just a tad below 500. Today, one week later, platelets are 400,000, and white count is 450. Trey, you will appreciate this, they finally told me to stop taking the allipurinol, they were just about a week late, I stopped it several days ago, I am still supposed to take aspirin, but they did reduce it to the baby, and not 2 full strength daily (stopped that several days ago also). So, now that is all taken care of, I am to start the 140 Sprycel today, and return for blood work on Thursday, if the white count continues to go down, I am to visit oncologist office for shots, (3 times per week) for white count, I can't remember what the name of the med is for the life of me. I know my situation has not been textbook from the beginning, but I am looking for advice from the people who might have already traveled this route, or one similar. Or for that matter, anyone who has knowledge or opinion. Has anyone went off Sprycel for almost three weeks and then returned to the drug, if so were the side effects as severe as the first round? I am not looking forward to those railroad spikes being driven in my head. It is, what is it, but this time I am going to make use of the xanax and ibuprofen instead of suffering because I am concerned with the liver.
I pushed to restart the Sprycel at 100 mg, it didn't work before, but we are in a different ballgame now. No one would budge. Even oncologist office was a bit skeptical about the dosage because of my white count. So bottom line is, Sprycel 140 mg, low dose aspirin, what does anyone/everyone think?