I was dx three months ago and been on Tasigna for about two months now.
The CML was discovered by a routine check up that I did every year. Physically
I always felt good, mentally was a different story, shock and devastation of course that
I'm still having some hard time with that news.
What I' trying to say here is that I really feel fine, I don't have any pain whatsoever like
muscle/joint pain, cramps, fatigue etc. They say that the first two weeks on Tasigna are the worst, but I was fine.
Maybe a little lower back pain especially the third and fourth day but luckily that pain went away already.
Had some issues with my pancreas numbers and low platelets but luckily they also bounced back
and the last time I checked they are within the normal ranges already, can't feel those.
Thought I was having an irregular heart beats but now I think that was caused from all that stress following my diagnosis.
The only side effect that I'm experiencing right now is a dry skin, especially on my face.
So, after reading all of the side effects that many are going thru I just can't help but wonder when and if
will I get some of those. Can the side effects get you at anytime? Is it normal not to have any pain?
I have been told that I have this disease but I don't feel it so I don't get it what's going on,
except from what my blood work shows of course.
I hope and pray it stays this way and wish everybody else would feel the same and I feel so sorry to hear what others are going thru.
Could it be that the three months are still too early for the side effect to kick in? Can they kick in at ANYTIME?
Wish I can change how I feel mentally though.