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Side Effects Vs. Allergies

Started by Judy2 , Nov 23 2011 09:42 PM

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#1 Judy2

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Posted 23 November 2011 - 09:42 PM

Hi Everyone. I have a question. I saw my onc. today because of a very bad rash I had on my face from Tasigna. He told me to go off the Tasigna and if it's better by next week I can restart the Tasigna at one pill per day. However, about 3 hours ago I noticed the rash had spread to my arms (my last Tasigna was 24 hours ago.) I took 180 mg. of Allegra and the rash on my arms is now better, Does this mean I had an allergic reaction to the Tasigna or was the rash a side effect. I will discuss it with my onc. when I call him Monday but now I'm thinking I may not be able to restart the Tasigna at all. If this is the case I will only have Sprycel left of the FDA approved drugs. Kind of scary. Any thoughts?

Judy

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#2 markmendonca

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Posted 23 November 2011 - 10:10 PM

was it a rash or did your face get red and hurt if you touched it?? because when i started T two weeks later it hurt and i got a so called rash but it went away one month later.u can call if you like. Its 10 pm here in boston but if you need someone to talk call Mark

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#3 Judy2

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Posted 23 November 2011 - 10:25 PM

Hi Mark. You are very kind. I'm too exhausted to call tonight, maybe we can talk this weekend. I actually had some swelling as well as redness. Also, I had some bumps almost like welts. Have a very Happy Thanksgiving, Mark.

Judy

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#4 janne

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Posted 23 November 2011 - 10:35 PM

Judy,

I got a rash also when I first started Tasigna. I did not have anything like that on Gleevec. It was sort of an inflammatory rash, it diminished when I reduced the dose. I think it is worth a try to start back at a much lower dose gradually. That is what I did. It may not be an allergic reaction at all, but rather a side effect. I have been able to take it with not nearly the reaction I had initially, just barely noticeable. Good luck !

Janne

Dx'd: 8/2008. Started Gleevec 400 mg 11/08.

Drug break 2011.

Started Tasigna 4/11 450 mg.

Reduction to 300 mg Tasigna 1/2012.

PCRU 9/2012.

12/2012 Detectable.

PCRU 4/2013 through 3/2015. (Reduced to 150 mg 7/2014)

12/2015 ? slightly detectable at probably less than 0.01% per Mayo Clinic.

4/2016 PCRU. Still at 150 mg Tasigna.

CESSATION: stopped treatment 7/20/2017.

9/6/2017: barely detectable at 0.01%.