Most doctors just don't get it. I once told my doctor "after we meet, you don't think about what we discussed for three months, whereas I think about it everyday for three months".
CML Prognosis/Outlook
Started by
Dina
, Nov 20 2011 06:55 PM
22 replies to this topic
#21
CallMeLucky
-
- Members
-
- 216 posts
Advanced Member
- LocationCT
Posted 21 November 2011 - 04:08 PM
Date - Lab - Scale - Drug - Dosage MG - PCR
2010/Jul - MSKCC - Non-IS - Gleevec - 400 - 1.2%
2010/Oct - MSKCC - Non-IS - Gleevec - 400 - 0.25%
2010/Dec - MSKCC - Non-IS - Gleevec - 400 - 0.367%
2011/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.0081%
2011/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2011/Sep - MSKCC - Non-IS - Gleevec - 400 - 0.00084%
2011/Dec - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Mar - MSKCC - Non-IS - Gleevec - 400 - 0.004%
2012/Jun - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Sep - MSKCC - Non-IS - Gleevec - 400 - 0%
2012/Dec - MSKCC - Non-IS - Sprycel - 100 - 0%
2013/Jan - Quest - IS - Sprycel - 50-60-70 - 0%
2013/Mar - Quest - IS - Sprycel - 60-70 - 0%
2013/Apr - CUMC - Non-IS - Sprycel - 50 - 0.036%
2013/May - CUMC - Non-IS - Sprycel - 50 - 0.046%
2013/Jun - Genoptix - IS - Sprycel - 50 - 0.0239%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0192%
2013/Jul - Genoptix - IS - Sprycel - 70 - 0.0034%
2013/Oct - Genoptix - IS - Sprycel - 70 - 0.0054%
2014/Jan - Genoptix - IS - Sprycel - 70 - 0.0093%
2014/Mar - Genoptix - IS - Sprycel - 100 - 0.013%
2014/Apr - Genoptix - IS - Sprycel - 100 - 0.0048%
2014/Jul - Genoptix - IS - Sprycel - 100 - 0%
2014/Nov - Genoptix - IS - Sprycel - 100 - 0.047%
2014/Dec - Genoptix - IS - Sprycel - 100 - 0%
2015/Mar - Genoptix - IS - Sprycel - 100 - 0%
2015/Jun - Genoptix - IS - Sprycel - 100 - 0%
2015/Sep - Genoptix - IS - Sprycel - 100 - 0%
2015/Dec - Genoptix - IS - Sprycel - 100 - 0%
2016/Mar - Genoptix - IS - Sprycel - 100 - 0.0228%
2016/Jun - Genoptix - IS - Sprycel - 100 - 0%
2016/Sep - Genoptix - IS - Sprycel - 100 - 0%
2016/Dec - Genoptix - IS - Sprycel - 100 - 0%
2017/Mar - Genoptix - IS - Sprycel - 100 - 0%
2017/Jun - Genoptix - IS - Sprycel - 100 - 0%
2017/Sep - Genoptix - IS - Sprycel - 100 - 0%
2017/Dec - Genoptix - IS - Sprycel - 100 - 0%
#22
Susan61
-
- Members
-
- 43 posts
Advanced Member
- LocationNew Jersey
Posted 21 November 2011 - 05:10 PM
Hi Dina: Let me first say that these doctors aggravate the heck out of me. Years ago when hardly anything was known about CML with the exception of a BMT which was still not fool proof, the average survival rate was around 10 years. I have read that so many times in different articles. When I was first diagnosed, and I had a very good Oncologist he was pushing for the BMT, because my treatment back then was not working. He had nothing else to offer me.
When he retired, and I saw the doctor who took over his practice I did not like the man from my first visit. He had just gotten out of medical school, and was coming off like this big CML Specialist who knew everything. Well, I did leave him, and I am with a new doctor now. I like her, but if at some point I am not getting the right answers I will move on again. This is your body, and I say this over and over again. If something is not right then run do not walk till you find a doctor who knows what he is talking about. I also Love Lucky's answer to it all. Let these doctors walk in your shoes for a few months, and see how they like it.
Susan
#23
momruns
-
- Members
-
- 0 posts
New Member
Posted 21 November 2011 - 06:19 PM
Dina
On the day I got my Dx I went home, jumped on the computer, saw a site that said 8-10 years, logged off right away and cried, then I went to the L & L site and never ever looked at anything except Trey's suggestions, MD Anderson, L&L.
Loreta
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
