Gerry, thank you for bringing that to my attention. About 3 weeks ago, I fell in the shower and hit my neck...that could explain why I'm having so much trouble getting the muscle to relax. Thanks again!
DeAnna
Do side effects of Gleevec and CML sub-side?
Started by
dmball22
, Nov 13 2011 09:40 PM
28 replies to this topic
#22
Pin
-
- Members
-
- 202 posts
Advanced Member
Posted 14 November 2011 - 09:54 PM
Absolutely, that's the main reason I eat it! I buy the brand that has the most insoluble fibre in it. Also, thanks Gerry, so many weird changes to keep track of - my latest one is pale skin...could be worse though, hey 
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
#23
GerryL
-
- Members
-
- 0 posts
New Member
Posted 15 November 2011 - 04:42 AM
Hi DeAnna,
One thing to remember not everything is related to CML or Gleevec, though a lot of things are. LOL
So if things don't seem quite right or go on for too long then it might be worthwhile to get it checked out. Better to be safe than sorry.
#24
GerryL
-
- Members
-
- 0 posts
New Member
Posted 15 November 2011 - 04:46 AM
Hi Pin,
Just make sure you slip, slop, slap.
#25
buffalothc
-
- Members
-
- 0 posts
New Member
Posted 07 January 2012 - 01:06 PM
Finding this thread has been very strengthening. These side effects were just starting to wear on me. I'm glad to see that what I'm experiencing is normal. It's also wonderful to "see" that there are people out there that have survived this for so long. Thank you.
#26
Happycat
-
- Members
-
- 5 posts
New Member
Posted 07 January 2012 - 05:31 PM
Hi, Tarik,
How long have you been in treatment? This is a great forum for getting real world answers from those who have been there done that.
Traci
#27
LynnieR
-
- Members
-
- 0 posts
New Member
Posted 11 January 2012 - 09:24 PM
Wow my skin seems much paler....so this could also be a side effect of G.
#28
GerryL
-
- Members
-
- 0 posts
New Member
Posted 11 January 2012 - 11:32 PM
It is the Gleevec, it does something to the pigmentation process of our skin, eventual thinning of skin is also another side effect apparently.
#29
buffalothc
-
- Members
-
- 0 posts
New Member
Posted 16 January 2012 - 07:57 PM
I started Gleevac in July 2011. I was diagnosed with CML June 28th.
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
