I went to the doctor today for my 12 month PCR results. Not exactly the news I was hoping for...I was expecting the big ZERO. My 6 month PCR results showed .002% detected...so I think it is natural to expect my 12 month to be zero, right? Well...it wasn't. I was the same as my 6 month visit: .002%. I know that that is AWESOME...but in my mind...I had fully expected zero. So feeling a bit deflated.
He asked how I was feeling...said I am living the 'new normal'. Some days are better than others. Fatigue biggest complaint; occaisonal leg aching, particularly at night; few rashes. But nothing that I'm not used to at this point (although the leg aches are newer). I did express how the cyclical part of the 'new normal' is just frustrating - not knowing how I'll feel each day. But it is the new normal so I need to accept it as that.
So...moved to labs every 2 months; PCR every 6 months - see him in 6 months. And that's it! Hoping that the 18 month PCR gives me what I expect....ZERO!
(Please excuse my less than positive vibe...I know I'm doing well...but its a numbers game. You expect to see ZERO...)