Boy it's great to hear from you now and then. I can't even imagine how busy you and Greg are. When it comes to this site I have a mental block about learning about pcr logs etc. The only thing I really know is I was 90,000 at dx. That was 4 years ago I get bw once a month and see onc or his assistant every 3 months. I get a bcr-abl test every 3 months along with my regular bw. I was told you can't get the bcr-abl test on a Friday, or the day before a holiday because that sample is only good for 6 hours. So they have to get it to the main lab in a certain amount of time. Last year my Onc got a new assisstant and when she looked at my chart she said my bcr-abl was zero and it doesn't get any better than that. I was satisfied with that. I don't ask questions because I'm afraid of the answer. At dx
4 years ago I went home and started putting my affairs in order, I started writing my obit,Picked out this red suit I have I just love that suit but it's a bit snug so I left instructions for the funeral director if it was to tight cut it up the back I doubt that anyone else would wear it after me. I made a note to myself to pick up a pretty white blouse and no shoes. So I'm the type of person that too much knowledge is not to good for me. I am lucky to have an excellent onc/hemotologist so I just put my trust in him. So how is Greg feeling? And how are you and that beautiful daughter of yours doing? Okay I hope.She is a beautiful girl you might consider locking her up until she has some wrinkles and grey hair.
I feel pretty good except I'm so tired all the time. But I have those 2 other health problems (not cml) related and the meds I take yup cause drowsiness. And I just developed high blood Pressure (wonder what took me so long) so I'm on 2 different bp meds. Yup they cause drowsiness. The bp is still not under control, we were planning on going to Fla. for the winter. And we wanted to spend all the holidays with Ron's family.My doc's won't release me yet but next week I get a nucular stress test so hopefully doc will release me. And I'm off to Fla.When Ron retired 6 years ago we're at the mercy of medicare,planb and the Pa fish and boat commission which Ron retired from,and the rail retirement board which my deceased husband worked but was not retired .What a mess. So if we don't get all these tests they may not pay for, even my cml bw.
I'm sure I'll have access to a computer in Fla. You have my e-maill address so if you send me yours I'll be able to write to you. I also have a sister-in-law in Boynton Beach on the atlantic side we try to visit her to. Maybe we could arrainge9(forget my spelling I just can't do it anymore) I had to buy a dictionary but that doesn't help much ask Greg he'll understand Brain Fog! I'll keep in touch and maybe we could meet at Disney World. Ron has never been there. Greg and I will have to rent scooters, I've been there before. Anyway it's a thought!. You all need it. lol Billie