8 replies to this topic

[saiyogo]

Well, I just returned from an appoinment with my Onc earlier today. Both of us were supprised to see the lab result (which was taken 3 week earlier), both the FISH and the PCR results are negative.

This is only my first PCR/FISH test after dx in June. I didn't expect it at all because from what I was reading around here Gleevec is a slower med and I need to be patience.

Although the Onc was quite happy, even suggested me to celebrate, I still have some question lingered:

1. Is this normal to be PCRU that early, 3 months ago my WBC is 49k and both the FISH and PCR were positive (they didn't tell me the exact number). Could it happen that I was misdx or something.

2. Does this mean I can start counting today and hope for a chance to reduce my dose like Trey and some other. Though not very awlful, the med made me quite tired sometime.

3. My metabolic test shown a slightly elevated creatinine, so what does it mean and what to do about it?

And good day everyone, though rarely posted, I read the board almost everday

Love all of you

[grannyd]

Congrats on your good report!!  Always good to read about good reports!!!

[LivingWellWithCML]

Wow, that is incredible news --- definitely much faster response than the norm.  Congratulations!

What dosage are you on?  400mg?

[CMLSurvivor]

That is great news!!! I do not think it is all that unusual to have PCRU at three months. You were diagnosed pretty early at 49K.  I obtained PCRU within 5 months and was diagnosed at 52K which is also pretty early. My doctor did not reduce my doseing until I maintained my PCRU for at least 3 years and only because the side effects were truely a bother. I barely could get away from the bathroom if you know what I mean.  Keep the faith! You are doing wonderful!

[Susan61]

Congratulations!!!!  I do know somebody who got to PCRU in 3 months. I was very surprised, and she is still doing very well.  She does not join the group here, but I keep trying to encourage her to do so to share her great experience.  The creatnine can be off for many reasons.  You can have a abnormal kidney function just from being dehydrated, and then it can go back to normal the next month.  I do not drink enough water, and my doctor keeps telling me to hydrate myself.  I am sure it has no connection to your Gleevec. 

Susan

[Trey]

The lower the WBC at diagnosis, the faster the response can be (but not always will be).

Creatinine issue:

http://community.lls...age/48341#48341

[Pin]

Hey Xuân Nam, that's awesome news! Congratulations - I hope you are feeling much better with these results How is your work going?  Cheers, Pin.

[Marnie]

Congratulations!!

Marnie